AWAKE.........

Ruby Rose just wanted to say......

CONGRATULATIONS on your clear Mammogram! Always a slightly worrying time but great to hear you have the all clear! Hope you sleep well tonight xxxxxx

Hi Snowys Mum, I think only you can decide when or if you are ready to give up nursing! I know how hard you have worked over the last through months. Probably the hardest few months you’ve ever had to cope with, but you did! So don’t let a computer system beat you without at least giving it a good try! I’m sure once you’ve got the hang of it you’ll be fine!

However nursing isn’t about sitting and looking at a computer screen! I’m sure that’s not what you trained for! I remember when I was in hospital following my sternum surgery. Each morning the Doc in charge would push in his trolley with a computer on it, followed by the lead nurse with her computer. They looked at the computer and chatted while standing at the end of my bed then went on to the next patient. I wasn’t asked how I felt, I don’t even think they said good morning! It was surreal and certainly not caring in any way, shape or form! When I was being discharged the matron came over and asked if I would fill in a form telling them how my time there had been and if I could think of any ways in which they could improve things! I told her the piece of paper wasn’t big enough!! At which point she pulled the curtain round, pulled up a chair and sat and talked to me! First real contact I had had since I was placed in that ward 3 days earlier!! 
I totally understand that computers are required to record information. But not at the expense of the patients care! 
Whatever you decide Helen, you should be VERY proud of what you have done over the last 39years! Thank You xxxxxxxx

Flossie25 and anyone else who struggled to find the cat amongst the owls! It was on the right hand side approx half way down! A cat with its mouth open! Xxx

So, cycle 2 of Eribulin completed,  and my tumour markers are down. More to the point, I haven't been an inpatient for a whole month. Yeay me! 

Me too! Gone down a rabbit hole listening to ‘you, me and the big c’ podcast and then instagram and now this. Good old steroids... 

Don’t think I fully understand this yet :/ 

Yes, steroids are fun. Sleep? What's that? Lol.

Well the pre chemo steroids I had with my EC chemo cycle today (Yesterday!) and for the next 3 days I have to take them in the mornings- not the biggest fan tbf. You?

I've been on steroids for a year now, treating immunotherapy induced conditions, so sleeplessness is a long standing problem for me. Now I'm back on chemo, I have, like yourself, three days worth of steroids to combat side effects. Treatment day (today) is worst for sleeping, because I don't get my treatment until late afternoon. I can take the steroids in the morning from tomorrow. 

It makes it all so much harder without sleep doesn’t it? Although I’m lucky I don’t have anything to do apart from rest during the days. But emotionally it’s very draining. How often are you having your cycles? I hope you don’t mind me asking - I’ve been seeking someone going through something similar to me, I know people who have done it but now who are currently going through it.