AWAKE.........

Happy Birthday to Cazzy AKA hope you had lovely cuddles with Lister Cat xxx

Yes, Happy Birthday , hope you’ve had a lovely day

hugs xxx

Night night fruit loops, sleep well

sleepy fairy dust is to hand to help

hugs xxx

Thabk you everyone for birthday wishes I had lovely day bar been in lot of pain =( just been out with family well mum my brother his girlfriend my sister hubby and two kids was lovely lucy brothers  gf asking if I wanted desert i said no nipped out and came back and the waiters came out and they all sang me happy birthday mortified hahaha I need fairy dust moomy with this pain it been decided by mum wndni in going to increase my slow release morphine to 40mg during day from 30mg. Also anxieties kicking in as seeing physcolgist tomorow first time =( xxxxx

Night everyone sleep well 

margaret x

 pleased to hear you had a good day. Although the pain seems a huge issue for you. Who is in charge of your pain meds? GP, Oncologist, Hospice Nurse? I only ask because it doesn’t sound like anyone is helping you! 
Is your slow release morphine via a patch? If so have you not been asked to keep a diary of how much oramorph (or whatever breakthrough medicine you have) you take in a day/week? As this is how they calculate how high a patch you need. It takes time but eventually you get to the correct dose for you without giving you too much too quickly! Of course this is assuming you have patches! Although I assume the same would apply to tablets?!

I think you should talk to your Specialist nurse and explain that your pain meds aren’t quite right. It’s not really something your mum should be trying to sort for you, bless her! I hope you can get it sorted soon. 

Wishing all you lovely Fruit Loops Good Night! Hope you sleep well. Xxxxx

Oh and nearly forgot. I had a message from yesterday. She said to pass on her Best Wishes, she’s hoping to be back on here soon. Love you Jess, keep going Hun xxxxx

moomy hey....thanks for keeping fairy dust freely available- I’m sure it is a challenge to maintain supplies!

i just want to say thank you as I find a sprinkle really does help!

‍♂️‍♂️‍♂️‍♂️‍♂️‍♂️

Hey hey. 

It's tablet's and we do keep mental note of oral morphine I take my mums nurse BTW and my dad's consultant doctor but usually they say if I'm having three or so oral morphine I up dose and it's been worse cause I had radiotherapy last week I expect. I originally was discharged back in June on 60ng twice daily but managed to get down to 30ng but pre gablin gone up that is because I discuss pain relief with my macmillan as she specialist macmillan in palative care she knows I don't really like effect of it on me 40 I can manage 50 I feel out of sorts

NY anxiety has suddenly shot through the roof because I heard lister meowing when I went for wee and he wanted come out on hall way most likely to my bed but we worried he will wee in it or wake me uo but I thought I'd sneak him in and he's not bothered about the r carrying him short amounts time but tonight he was really wriggly and squeeled and then had trouble breathing then he calmed down and letter sat by radiator in kitchen but now worried sick want him in ny bedroom =( and I'm anxious about physcolggist and can't have any lorazpam I need sleep meh but when I'm anxious I don't sleep meh meh xxxxcc

Hey fruitless

I need fairy dust but making do with gin. I don't like gin but I will soon be asleep. Really struggling with life. Too many things to list. Trigger fingers giving me he'll.

This will get better. Been there bought the t shirt. But 13 years older. Five stone heavier. No longer have the distraction of a full time job. Oh and a lover. 

Tomorrow will be a better day. Tomorrow I will cuddle my granddaughter and breath in her smell as she struggles and tries to get away.Tomorrow I will go through with yet another physiotherapist why my feet hurt. Tomorrow I will thank God for mammograms and surgery. But today I'll sip my gin and eventually go to sleep.

Hey there

Ive no doubt this being the ‘awake’ thread and all that, that this question has been asked a million times before. But does chemo cause insomnia? I’m getting worse and worse at sleeping! I’m not on any meds at the mo, 9 days after first Docataxel and I seem to be averaging 3/4 hours a night. It’s driving me mad. Would love to wake up feeling rested, rather than woozy all day long xx