AWAKE.........

Hello All Fruitloop People out there,

Just had a quick skip through the posts and checking in with all you nice and lovely ladies.

I loved the guinea pig pigtures. Hope you have a lovely weekend and I'm sure your plants will be watered it is raining buckets here.

Hugs to seaspirit44 hope your lifelong friend gave you the support and inspiration to put the low feelings to one side xxx

LondonLass i'm so sorry you have been let down by these pesky BCN's the problem is that all nursing and medical services are inspected on a paperwork basis. So if it looks okay on paper ( the correct boxes ticked) that is all anyone cares about. It is because of litigation, they constantly have to be aware that they can be taken to court so it is all about covering your back on paper. They will have a criteria for each patient ( like you have been seen and assessed) and once it is met they move on, it is all wrong  

My sad news is that my friend passed away, she was diagnosed with Pancreatic cancer 13 months ago, she was only 55 a beautiful girl, she was the Hairdresser at work. How can someone lovely and healthy and full of life be gone? So in sadness I have shampooed all my carpets, the house is upside down, furniture on end, windows open everything wet, and I'm tired out.

Oh also I had a lady admitted on Anastrozole and not on any painkillers, she was visited by the consultant and I wouldn't let him go till he had written a prescription for regular pain relief. 

Sending love and hugs to all of you xxxx

Sounds yummy ! xx

Thank upu moomy and Snowys Mum, and sorry about your friend. xxx

Snowys Mum Helen really sorry to hear about your friend, 

I also wanted to say you sound like the most empathetic and caring healthcare professional. You clearly go above and beyond. You don’t just do the paperwork you remember what the job is really about, ‘caring’! Caring for that human being who is trusting you, relying on you to make their life more comfortable. You are an amazing woman. Xxx

I totally understand what you were saying about the form filling and being seen to be doing everything by the book! But, I’m not sure my hospital have even got that right. Would you email a patient in reply to them requesting help and tell them you have No breast care nurses available to help them, and that she should go elsewhere! I know you wouldn’t! My point is I don’t think they should of either, especially as this was the head of all the clinical nurse specialists! 

But I shall see what happens next week! I’m sure the nurses will be falling over each other to sit in on my appointment, saying yes and no in all the right places to look good in front of the Oncologist! But as soon as you are away from clinic, they all disappear! Have my fingers crossed that the new Secondaries Breast Care Nurse has a bit more compassion! 

Wishing everyone a lovely long and peaceful nights sleep. Xxxxxxx

Oww dear Fruit Loops, I think its group hug time.

I am so sorry I was not about seaspirit44 - the night time does always seem a lonely time.  I always have either the tv or the radio on - mainly the radio on LBC station, it is a talking station with people phoning in and at times is very good, other times I think they are shouting and moaning too much xxxx  

Dearest Helen Snowys Mum, I am very sorry to hear about your friend, this is no age, no age at all and so very sad.
Sending you big hugs and my deepest sympathy xxxx 

Oww LondonLass, I hope you get this sorted out, make sure you 'don't stand for been fobed off' - ask them to look at this from your side, that this was them it was happening to, how would they feel - do as AnnJac is doing 'you have to stand up for yourself' - as a friend said to keep remembering 'the squeeky wheel gets the oil'!!! (it is true).

I spoke to Mrsox the other day, I mentioned about the lovely Doc Martin Boots photograph that had posted and she said to 'Remember her to you all' so.... Mrsox says 'Hello to all the Riff Raff' hahaha 

To all our Fruit Loops, moomy, - I am so loving all you photo's and pictures, , Lacomtekp, toxophilite, , , - I do have to laugh when I say your name, for weeks I thought it read Granular, don't ask me why haha - its how I was reading your name, then about 6 months back I realised hahaha, HappyFeet1, Flossie25 and to all the Fruit Loops I have missed - I hope you are all managing to get a good few hours of sleep if not more.  Sleep Well Fruit Loops with Love and Hugs xxx

Morning all. Hope you all slept well. Or at least did better than my 3hrs!! Guess what I'll be doing this afternoon.. watching TV with my eyes shut....AGAIN!! 

Currently lying here with sweat dripping down my back and my legs are both soaked! Not the best way to start the day! BUT sadly to be expected, as I decided to change over from Venlafaxine to Fluoxetine as both my trusted Zoladex nurse and Hospice nurse pointed out... WHAT HAVE I GOT TO LOSE? When I thought about it I realised they were right.

So I decided to start the process of changing over on Friday, my thinking being that by Wednesday I will be just starting the new drug and so the likelihood is I'll be suffering a bit and hopefully that'll show Onco exactly what I am talking about! But we'll see.

Right, I suppose I should think about getting up! Although I could quite happily stay here all day. That way no one would have to see my ugly mug covered in sweat!!

Enough about me. How are you all getting on? Anyone done anything nice this weekend? Be lovely to see what you've all been up too  Xxxxx

Well it's been quiet on here today. Hope that means you have all been out enjoying the Sun, while avoiding the showers!! What a weird weather we have had in the Westcountry today!

I'm having an odd day too, which I sort of expected after so little sleep and the lower dose of Venlafaxine. I've felt very emotional and very temperamental. You know, when the strangest little things set you off and you can't seem to make a decision about anything!!

So where do you go when you feel like this? You disappear to the bathroom, run a warm bath and check in with the Fruit Loops! But then find that no one is around!! 

Nevermind, maybe there will be something to read later. I'll pop back on later. It's nice to think everyone is busy doing something nice. 

But if anyone is around it would be nice to have someone to say Hi too. Stormy weather here now bit like my life, bloody unsettled with HOT and COLD spells and a drenching every 45mins!  Xxxx

Hi Sal (londonlass) sorry we've left you alone but its been fairly miserable here too. Its bad enough that it's been raining most of the afternoon but England beat Wales at Twickenham. I think Walesre lulling England into a false sense of security in the run up to the world cup. So in order to make me feel better I decided that  a G&T was in order

Sounds like a perfect solution , enjoy!! Xx

Hi Londonlass

I'm in Calais. We are parked up and the sun is over the yardarm.

We get the tunnel in the morning. Far too windy for hubby to risk the ferry. Which is a shame as I do like a bit of a ferry shop.

I hope your day is getting a little better. By Tuesday we will be back to our new retired routine. Then on 16th it's my radiotherapy assessment and the journey continues.

We've had three weeks in Germany mainly with a bit of France. Weather has varied from bloody boiling to very stormy. But that's probably because I forgot my fluxotine! It's amazing hubby is still alive. I haven't told him but we've survived quite well. 

Loovve Germany. So clean ,so friendly and fab food, lots of pork and I love pork.lots of cheese too and as for the beer.

So Tuesday the diet begins. I've a party for retirement on 16th September and I need to get into my posh frock.

Chin up and smile. It worries people when I smile.

Hi  LondonLass 

Sorry to here  you're having an odd day . Can't say I've been very busy today been hiding out at our van in Cumbria since Thursday (treatment starts next week ) . We arrived in glorious sunshine anthen the rains arrived ..and stayed . Along with horrendous thunderstorms .Poor dog was hyperventilating. Could need a boat  instead of car now ! 

Ive been having "fun" instructing hubby on how to cook some basic meals ..hilarious !  Forgot he's a man who can't multitask , make decisions or even has a clue where anything is in kitchen

Todays highlight was after making a pan of Leek and Potato soup I just manage to stop him straining soup into sink !! His response was but you strain potatoes lol

Hope I can manage to cook when I start chemo . I'm not feeling too bad emotionally at the moment but I'm sure that will change next week when I start treatment . I just jumping on and off the emotional rollercoaster . 

Unlike you My journey has only just started and I hope I can stay as strong as you are .

oops chef calling me we'll see how he's managed gammon steak  meal