AWAKE.........

Hi Gay

So pleased that your Mum has no spread to her lymph nodes. Just hope she does not need chemo.

I am on Arimidex and have been on them for over 9 years now. Can't wait till next year to be taken off them. Hopefully my joints will be back to normal and I feel more like the old me.

I still get hot flushes but they are not too severe now. Flushes are followed by feeling cold. I call it lizard mode.

Feel like stopping them now but am scared stiff in case I tempt fate and the cancer comes back.

A couple of G and Ts for me tonite so Cheers. 

Sue xx

Cheers Sue,

I watch your posts as I have a similar diagnosis to you - lots of lymph involved. It really makes me feel better reading your posts. Lobular cancer is such a sneaky bugger. It sometimes feels so unfair. I always used to check for a pea sized lump - I never realised that it could be different. I was really disheartened at first, but I read your posts and they gave me hope. So ....thank you! Your posts have made me feel so much better thoughout my 'journey'. Sometimes I feel a bit cheated that I am going through this at age 44, but who knows what life is going to throw at us,

Cwtches,

Gay xxx

P.S enjoy your G and Ts

Hi Gay

You are welcome. I try and come on the site most days as I think it is important to tell ladies that you can get through the treatment and get back to a new normal.

I was 57 when diagnosed and had lost 2 stone in weight so knew something was wrong. Had inverted nipple hence my referral to the clinic. My GP thought the weight loss was due to stress as I was going through a messy divorce at the time, Had mammogram, ultrasound and biopsy on the Monday and got the results on the Friday.

My GP couldn't believe it. I told him I was ill with something horrible. The Consultant said well spotted as we know Lobular cancer is harder to spot.

I am so sorry for all you ladies under 50 that have been diagnosed with this evil disease. God knows what is causing this. It used to be ladies over 70 that were affected

I have 4 lovely grandchildren aged 5 and under. I am so grateful that I have seen them born and the oldest 2 are at school. Hope to be around for a good few years and see them grow up.

Love

Sue xxxxx 

Hi All, I am back! Have just caught up on about 50 posts! Felt a bit rough for a couple of days but well on the mend now and hopefully home later today or tomorrow. Thank you all for the lovely wishes and sorry for the delayed reply. Hope you are all okay, xxx.

Morning ....is this how you post on the is thread ....doh I'm not use to computers ...Jo glad your feeling better now ...poor you having such a time of it ...fingers crossed you'll be home later today ...I'm out today as I'm trying to not think about Thursday too much ....I'm bricking it so much ...silly I know ..    but the sooner I get started the sooner ill finish ...hey ho on we go ....have a good calm day ....lots of love to you xxxx

Hi Gay, sounds like you had a very busy week, hope you are now enjoying a nice relaxing weekend.

Karen I hope you are enjoying your time off and you are feeling 100% again. Been up to anything nice this week?

Jo, I hope you are feeling better and will soon be allowed home,  if you haven't already!

Lynnn, welcome to England :-) Hope you have a fantastic time. How long are you over for? Any nice plans for while you are here?

Aliasdj, hope you are feeling a little more relaxed now you have had your scan results. 

Wishing everyone else not mentioned a wonderful weekend too. Hope it's a good one. Mine will definitely be a quiet one. I went out shopping yesterday, left the house at about 11.30 and was back by 4pm and in that time had been sat in the car for 40mins and been sat eating lunch for 40ish minutes, so not overly busy or energetic and yet I was completely shattered by the time we got home. I'm finding it really hard to admit to myself that I just can't do what I used to do, but I think I need to try and stop being so angry with myself and just try and look at what I did achieve........always easier said than done! 

Today I am aching all over and feel so deflated,  currently lying in bed typing this with tears rolling down my face. I just want the aches and pains to go away, I want to be able to get through a day without having to take any tablets, I want to be able to go to bed and sleep like 'normal' people do! I just want to feel like I am 'living' again and not just existing! 

I apologise  for being so miserable I know it's the last thing that anyone wants to read. But I suppose i'm showing others that find themselves on this cr*ppy rollercoaster that whether you are newly diagnosed, going through treatment, completed treatment or living with secondaries we ALL have OFF days and that's okay! 

I will battle through today and tomorrow WILL be a better day! Because whether I like it or not this is my life now and i just have to try and make the most of it!

Sending lots of Love to all, but especially to anyone else who is having an OFF day! We will get through it! (((((((((((((((((((((((((BIG HUGS))))))))))))))))))))))))))) to all.

Grumpy, miserable, emotional but usually optimistic Sal ;-) xxxxxx

Hi Jo

Glad you are back on the mend - I noticed you haven been on much the last couple of days and really glad you are now feeling much better.

Jo xx

happy mum

Glad you found us! Hopefully we can keep you company on your sleepless nights until you get through Thursday! I think once you have started Chemo and the fear of the unknown is gone you will feel a little more relaxed. Sal xx

Hi  

Thought you didn't 'do' computers :))  Looks good to me...

If you look at the top of the page on the right in the box marked Discussion Tools, you will see you can add this (and any other discussions) as a Favourite.

If you do this all your favourites are saved under the 'favourites tab' on your profile page - Makes things so'ooo much easier to find again :)

You'll soon get the hang of it all, G n' J

Ahh Sal, sleep deprivation is torture, without any of the crap you are dealing with you'd be an emotional wreck from the absence of sleep alone!!! I really really feel for you. There is a lot written about sleep hygiene and wind down.... have you tried treating yourself like a baby? I read you are a nanny - so was just thinking the full works - lavendar bath, warm milk, blackout curtains etc.... no phone!!! Ha!!! Easier said than done! 

I'm sure you probably have and cant take another bloody useless piece of advice!!! But judt thought id throw it in the pot! I also have read a lot about cannabinoids - they are used extensively in alternative treatments for metastatc cancer and have obvious relaxing/ sleep inducing properties. A win win! 

In terms of how your life is changing - the coming to terms with your new limmitations - thats domething only you can deal with - but a good rant, moan etc will always help eh? 

Hope your day improves... i really do... the sun is shining here in Wales .... i've just had the second drain out - so now i guess i need to come to terms with the breast or it's absence! Jeeeshhh - what a weird old thing this is eh? 

Sending positive thoughts and hope you have sunshine too? Helps a lot!!! Xxxxxxx