AWAKE.........

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  • Hi how strange i was thinking of you last night .I thought it ood as you said you'd be absent through uni work but it seemed a long time. How are you have you finished treatment except your surgery. Thank you for your support at last Birmingham meet about my tummy issues  I've finally been diagnosed celiac so getting used to the world of gluten free food yum xxxx

  • Hi again, I couldn’t explain the real reason I was off and as work was so busy, it was an obvious excuse. I will explain all at the meet. Will you be there in Nov? Great news about your tummy! A pain to be gluten free, but Celiac is serious, so you have to follow the rules. I am still on Herceptin and have it by drip every 3 weeks, as I had developed an allergy to it after the break from chemo. They pump me full of steroids and anti histamine first, also by IV, then give me the Herceptin. I am so drugged up that I can barely walk when I leave there and sleep for about 6 hours when I get home. Only 3 more to go though! My recon is in Mar or Apr next year and I can’t wait!!! How have you all been? I couldn’t even come onto the site, as it was too much to resist replying to people, lol! Xxx

    I see you still have the same IT issues on here! Grrrr!!!

    Jo Jo x

    None of us wanted to be in this group, but we are glad we're not alone.

    Diagnosis 2/8/17 IDC Her2+, 22mm, with spread to several lymph nodes. TCHP chemo started 23/8/17, Mx with immediate, temp recon 24/1/18, rads 20/3 to 10/4/18, Herceptin by IV until Nov 18. RR Mx Jan 23. Still waiting for reconstruction, but opting for simple implants, as opposed to Diep, due to long waiting lists for diep.

  • I don't know about November yet i don't think Snowys Mum can go so I'd be travelling on my own boo. Plus we have been twice recently and tomorrow second time of Manchester though much nearer to home. Hubby doesn't mind but I feel a bit guilty. We are also going to concert Sunday night of that weekend and as I'm not always great travelling want to be fresh for that  I'll see nearer time lovely you're back xxxx

  • Well well well @JoDec..wot a dark horse!!well done for keeping it quiet!!xx

  • FormerMember
    FormerMember in reply to Violetsniff

    Re-charge those batteries and come back soon.

    hope you get good results today.

    lovely to see you back was wondering where you'd gone.

    Wish I could get to one of the meets. Hopefully next June/July I've got to come back to my original hospital for yearly check (my choice rather than here.. also excuse for a long weekend).

    I'm going away for 4 days next week, just me son and kids … sons idea as we never get time together, so really looking forward to that. Spent this morning picking up tiny buttons and glitter off the floor - whose idea was it to glue pictures with toddler yesterday? We were sat at table then out of the blue she said 'grandma you're cute' I didn't know whether to laugh or cry it was the best thing I've ever been called.

    Aqua fit class cancelled for later so will just have a swim - been going last few weeks love it. Sore throat finally gone so all's good.

    Have a good day all

    xx

  • FormerMember
    FormerMember in reply to FormerMember

    Mmm. maybe am overdoing it a little, I've done my biggest stint at work 8-5pm, then this evening when reading (standing up, as my son has a raised bed) I started having a really bad dizzy spell.  Poor thing, I 'improvised' on one of the pages, and had to lie on my bed for a few minutes afterwards.   All good now, I have another small op  end of Sept so I think am trying to fill my time as much as I can.  It's lovely to read everyone's posts.  xxx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi everyone 

    Just popping on to say that my Mum died today. It feels so strange writing that. My Dad was with her, he said it was very peaceful. I know we were expecting it, but it's still hard. 

  • FormerMember
    FormerMember in reply to FormerMember

    Purple diva.....so sorry to hear your sad news . Take care of yourself ( and your dad ) ....best wishes 

  • [[[[[Hugs]]]]]] , so sorry about your mum xxx

  • Being expected doesn't make it any easier. xx

    Karen