AWAKE.........

Hi lovely people! Just nipping in again whilst I can...

Firstly, althoughI haven't read back longways, sending massive hugs to GBear and and LondonLass - sorry that you're all suffering pain and symptoms that you could well do without - hopefully you'll get some relief soon! Hugs also to everyone else who needs or would like one! 

Eddiboy - glad to hear that you have now had the op and that it seems to have gone well - take it easy though! 

Well, I'm still lounging at hotel NHS but hopefully go home tomorrow if oxygen levels are acceptable overnight a d in the morning - yay! Saw oncologist today - says that I will be at risk of throwing more PEs in the chemo and that he would normally give it a break for a bit, but then we risk missing the window for improving the lymphangitis! So chemo will start again next week on a reduced dose with daily anticoagulant injectiosns for life to see if that stops it happening! 

Mortality loomed again today when we agreed to a  DNR form and no intubation if my lungs gets bad enough to warrant ICU - the intervention will not help and will only postpone the inevitable - I'd rather leave with dignity than be jumped on for no good reason! Still, not thinking about heading that way in the near future if possible! 

Hopefully by tomorrow evening, I'll be back with you all in a more supportive way - sorry for any important things I've missed! 

Thanks for the hugs Cathy always appreciated. I do hope you escape the hotel nhs in the morning, always better in your own bed. Maybe the anticoagulant injections work, althbeing on them long term sounds no fun, but if it works it’s worth it. 

I am off for a very early night, so exhausted but not knowing what to do with myself feeling too, oh frustrating. But i hole a good long nights sleep will help give me some energy.

Good night all sleep tight.

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you really are as above..

Stop lounging and get home soon, the fireworks are waiting.

Daily injections sound a pain, will you have them at home or have to go to hospital everyday?

I had a dirty thought for a moment when you said 'rather than jumped on for no good reason' … sorry dirty mind

You are going to be here for a long  long  time, all those ballets to go to.

Thanks for the hug, I shouldn't moan at all, it's all so irrelevant.

Take care and get back with your fruit loops.

xx

Ha ! Haven't got the energy for any type of jumping at the moment!!!

Injections wI'll be do at home - a bit like the bone  marrow ones that went with FEC! Luckily I've got away with not having those as well or I really would be a human pin cushion! I've only had 4 of the jabs so far and I'm black and blue already - as they reduce coagulation they cause bruising! I'll constantly look as if I've been beaten up! Good thing I've got plenty the of helpful choose to stick them in... 

Bloody auto correct! How did it get from ' plenty of belly to choose from' to ' plenty the of helpful choose to' ???

Then it won't let me edit it! 

Sorry for people who might have thought they were reading complete gobbledegook! I blame the mind numbing boredom of a week in hospital!!!

For you Weeblemum will it work ? Xxxxx

That was a one and only attempt as you're the Queen of the Fireworks xxxxx

I hope you get some answers at A&E tomorrow. And a solution too.

everything crossed you get out of jail tomorrow. Bummer about the injections, let's hope they do their thing though.

Optimistic hope you're feeling a bit better. It's ok to have down times - and impossible to stay on top of things all the time.

LondonLass I'm sorry you're suffering so. Here's hoping your results come through soon, so you can move forward with things.

Now I'd better get off for a soak. It's been a shit day. One of my appointments got changed and no-one told me. Which meant I did 40-50 miles more than I needed to. And tomorrow's job is cancelled because it would have been a complete bugger up otherwise. Then someone told me to sit down and have a cry - she was told she didn't know how f*cking close I was to doing just that.

It's bloody hard to soar like an eagle when you're stuck with a bunch of turkeys.......................... which DOESN'T apply to any of you lovely fruit loops.

Goodnight all

Is this you Karen?

nite nite

xx

Nice one