It was one of the positives for me, finding out I was returning to friends of seven years when I was diagnosed yet again.
I've had a pretty sleepless night as yesterday was my first taste of " the Red Devi".
After drinking gallons, my pee had just a touch of the sunset about it.I can't wait for 6.30 to have a cup of coffee. Maybe next time I'll bring a flask up to make fruit tea to make a change.
Thank you all for the support and friendship, especially Karen in France for the
on starting this AMAZING thread! It’s been soooo helpful to so many, I do keep trying to pop on to ensure folk know that sleepy dust is available, but still post a diary-like entry on my own thread….
49,000 posts is crazy!!!! Like this thread!!!! Congratulations on keeping it going so long and supporting/ inspiring others to join you on it!! Love to all, HFxx
HappyFeet1 xx
Don’t be afraid to cry. It will free your mind of sorrowful thoughts. – Hopi
Hi Leelaloo, I hope you managed to get to sleep eventually. I think we all have nights like that when our minds just go into overdrive! I have always found keeping a notebook next to my bed and writing down my worries, helps me to put them aside until the next day when I have either forgotten about them or I can do something about them….if that makes sense!
Kind of a to do list. Things I can do something about and things that are out of my control! It took me a while but eventually it helped to stop my head going round and round in circles. If all else fails, get up go get a nice warm drink and then try again. As the longer you lie there the worse it gets!
Thank you Sal, I did go back to sleep for a while but it was filled with horrible nightmares. I feel exhausted today. Tonight I think it calls for half a zopiclone. I have a CT scan tomorrow maybe that's it but I really cant put my finger on what is bothering me. Normally I sleep well. Have a good day everyone x
I had a night like that. Brain went back to spoiling an Air Cadets breakfast putting too much salt on his egg. The link to this life I've lost my sense of taste so had to get OH to taste my cooking yesterday.
Horror kindle AND phone were out of battery. So ended up painting my nails. The quietest thing to do with grandchild sleeping next door. Then resorted to reading a book I bought for the eldest grandchild she'd rejected. That worked. I know now why it was rejected.
I doubt I will need rocking tonight. So far we have made bread, decorated a fur cone and we are now making a cube to hang on the tree. Oh and explained why the word pinny had a red line under it.
I read your post the other day and wanted to digest it before I responded. Firstly, huge hugs. Then. Yes it’s amazing news the treatment is working, brilliant. But it’s also totally ok to have that negative reaction to the news, the life you’re leading is precious yes and also exhausting in all ways, sometimes you’re allowed to call it out and rage against it all, it’s a pile of crap, and it’s relentless, necessary, but relentless. I’m pleased you could say it as it is to us, knowing we just send you love and can hug you virtually in understanding. Lots of love xx
