AWAKE.........

LondonLass - Sal - thanks for the up date on

Stupid tablet - just does what it flipping well likes! 

Anyway - lovely to hear that Jess got through her chemo, it was such a tough time for her and her family. Not so good that they've now been struck by the dreaded Civic, but fingers crossed that they are all on the mend and that they will be able to enjoy their new normal after this, with no further hiccups!  (Why did autocorrect try to change hiccups to bicycle???) 

Sorry to hear that Shellianis poorly with the dreaded virus - everything crossed that it will bugger off very quickly and she feels better soon! 

Hugs to everyone, especially Jess and Shellfish - not going try and post pics or emojis as tablet is playing silly buggers and not sure what we'll get, if anything!!! 

I seem to have been lucky yet gain in the fact that I've not had anything cancelled yet. Had a CT scan on Sunday and my word, what a change from normal hospital visits! The hospital was basically abandoned -  there's no visiting wards - and there were about 3 people in A&E. Just goes to show how many people don't really need to go! 

The x-ray dept was empty apart from us and one other man and he kept well away! I went into the Covid free scanner - no-one  with it or showing any symptoms or has had it allowed in there and it's scrubbed to within an inch of its life between scans! 

Scan was okay except they had to find a second vein as the first three times they tried to put the contrast in it blew back everywhere! After that it was fine. Took a little detour on the car ride back just to see a little bit of countryside as it was my first time out for over a week! Not sure when anywhere further than the back garden step will be available!!! 

Meant to have oncology appointment on 24th April for results, but I suspect that will be a phone call. 

Lungs has been decidedly dodgy for the past few days, and breathlessness very bad, which has made me very tired (does this sound like an an excuse for sleeping a lot during the day???)

I've created new medical terms for the problems I've been having - the main one is Squeezylung, which is a feeling like being constructed around the ribs by a large snake - very uncomfortable and means I can't take deep breaths. This leads to Hickburps, where the construction means that my diaphragm goes into spasm, so I hiccup all the time and food won't go down properly - lots of indigestion and heartburn! 

I'm continuing to write my own medical dictionary until the oncology appointment - gives me something to do between naps!!! 

Anyway, hope everyone is doing as well as can be expected given the circumstances - it's a horrid and difficult world at the moment and I feel for anyone who has had their treatment path delayed, stopped or altered - I'm lucky that I'm beyond that and knew what treatment I will or won't get well before this crisis. 

Stay safe and look after yourselves! Massive hugs to all of you! 

Hi all,

I am back! Sorry, it has been ages... I've been a useless fruit loop! And haven't things gone crazy with the virus? I'm probably quite lucky with the Isolating because I'm still so low on energy that staying home is not a challenge. Husband and twins are also lucky to be in the clear! 

I've had a scan delayed because of the virus but told that it should be rescheduled asap. Otherwise, I've been fortunate not to have anything cancelled. 

I'm feeling much better at this point and it's good to finally have a going forward plan, although the treatment has come with some annoying side effects! One particularly random one is that my bladder no longer obeys instructions and just decides for itself when it wants to empty, which isn't particularly convenient! I've been learning to do timed self-catheterisation but it is still a bit hit and miss and each day (and particularly night...) involves little "accidents". I really didn't imagine that when the twins were toilet trained I'd be back to toilet training myself!

I will read and catch up  but I hope you're all doing okay, virus free and not going too crazy in isolation!

J xxx

Lovely to hear from you Jess and glad all well with family xxx

great to hear from you lovely that you are feeling that much better . Also family in the clear .

margaret x

Margaret x

Love that 'tube map' Northerner how very apt! 

Great to hear from you and know you're through tough times! Toilet training, eh? My thoughts go out to you! My yoga teacher reckons each and every adult needs to do those pelvic floor exercises every day! And yes, having had an accident around this time last year when I got a UTI I tend to agree with her, and have been doing them religiously! So maybe when you've 'been' its a time to do them too? (contract once for as long as you can and count, try every day to keep a bit longer, then rest. Then 10 speedy contractions!....just a reminder of current thinking!)

Love and hugs to all fruit loops, xxx

Can't take credit for it moomy it's from silversurfers site

which is a very diverse magazine type site covers just bout every interest .

hope you having good day I've done home made butternut squash soup for lunch 

roast chicken for tonight . Hubby finishing some DIY .

so occupied for today 

margaret x

Well as boredom sets in my family have been trying hard to keep each other occupied and the brain cells working. Todays challenge was.....

To name the Characters/ Programmes....

Let's see how you get on! If you fancy a little challenge! Xxxxx