Hi moomy
yes text received new thread building up ....
just adjusting to that and digesting Guidlines when next announcement arrived . waiting for letter now hoping will answer questions about next treatment on 30 th .
very scary times my sister in self isolation she works in hospital .Got cold and high temp no cough yet .At this rate I'll have to use valuable toilet paper to wipe tears 
pinching some fairy dust
take care
margaret x
Margaret x
Margaret x
Hi
yes I was awake and managed to get a slot as the new ones were released - after midnight !
In my area that was for the 13th April !
take care
love
Ruby Rose 
Happy Tuesday (if that is possible in the scheme of things...) Fruityloops!
Well, as a lot of people here did, I got my shielding text yesterday - I'm counted as extremely vulnerable due to my lungs and the amounts of steroids I take reducing my immunity. I've been on lockdown for about a week anyway, so it didn't really come as a shock.
I know that if I come down with the virus, I won't be in the front of the line for the front loine of medical treatment - I have a DNR in place, and I will only be given ward level care - i.e. oxygen and antibiotics etc, - I will not be given ICU care as my lungs are not likely to stand up to ventilation etc at that level. This was fully agreed with my oncologist about 18 months ago, and certainly not in the way that was told - that was just horrible, a completely unethical way of discussing the matter!
According to the new guidelines, I can open the window but not go out, so I shall spend today sitting on the windowsill and dangling my hair like Rapunzel (my hair, oh good grief, that's going to be 'interesting'by the time 12 weeks comes - might have to have it shaved again!)
The one thing I can't understand - I have a prognosis of less than 6 months. According to the guidelines, that means I can choose not to be shielded if I wish. I sort of understand that this means that I could get close to members of my family over the nest three months, but surely that then puts me at increased risk of getting it, which would then put more pressure on the NHS! Are they trying to get rid of us first so we won't bunk up the system? I can't enjoy any of the things that I was going to do in the next few weeks as they've all been cancelled anyway, so why would I want NOT to be shielded? Seems a really weird thing to state - we all need to shield except for the sickest people, who can do what they like, well in the same way as everyone else can anyway!
Bizarre...
Anyway, big virtual love and hugs to everyone - hope that you all find ways of getting through this madness without suffering any further health issues, either emotional or physical.
