AWAKE.........

Sorry to hear you are struggling to sleep too Judith. Sending you a (((((((((((supportive hug))))))))))) hopefully this will be a short term issue for you. I have four fans that are left around the house, so when I feel a flush starting I can get flapping!i

Keep going Hun, I hope Lynn's idea of changing the time of day helps, it's certainly worth a try  Sending you lots of love xxxxx

Must admit, I'm not sure I look quite this cute! Although I definitely have the glazed over look!  Plus the slightly, okay VERY vacant expression! 

Now the BIG question is, can I get another little sleep in before my alarm goes off??? It's worth a try!! Xxxx

Evening all, 

Now what picture could I find to explain my day! In fact to explain the last year, possibly more........hmmmmmmmmmmmm.......think this one covers it!!!

Now are you sitting comfortably? Then I shall explain!

Last week I called the hospice nurse and left a message asking her to call me, as I had issues with the painkillers I was taking. One of the other nurses called and left a message to say my nurse was off on annual leave but if I called back she could chat to me!

i called back the next day and asked to speak to the nurse who left me the message, the lady I spoke to apologised and said she wasn't around at that time, but that she would pass on the message and get her to call me! This was on Wednesday! I didn't receive a call on Wednesday, Thursday or Friday! I decided it was easier to wait for my nurse to come back than to keep trying to get to talk to this other one!

So first thing Monday morning I called to speak to my nurse, she was still off, but the other nurse was there and she came on the line! So I explained my issues and her response was that I needed to make an appointment with my GP and she would sort out my pain meds, I tried to explain that my GP didn't put me on this drug, the palliative care nurse did, with the backing/organisation of the Hospice nurse. But no, she decided I should speak to my GP and she arranged an appointment, because the one I had booked for next week was too far away! So she organised a phone consultation with my GP for this morning!

So, my GP called, asked what the problem was and I explained. Oh, ummmm, errrr, hmmmmm so where do we go from here? I explained that since increasing the Oxycodone due to pain, the sweats have gotten worse again, so she suggested I reduce the Oxycodone back down so the hot flushes would improve.......hmmmmm......but what about the pain? Oh yes good point, well what do you want to do?

i explained that I had been in contact with my BCN and asked if they could get me an appointment with the palliative care nurse. She replied and said she would but she's off until Monday. I also asked if the oncologist could look at my scans again and see if he could work out what was causing the pain, as this might help them to find the best drug! So they will review the scans with the radiographers at the MDT on Tuesday. 

So my GP said she would be happy to prescribe whatever the palliative care suggest :-( Which is fine, except I don't know when I might get this appointment, so in the meantime I am left in the same position I was 2 weeks ago! 

I feel like I am going round and round in circles and just hitting my head against a brick wall! I am stuck with Hot Flushes, night sweats and pain for another weekend! I just want to have a rest and some sleep, but it doesn't look like that's going to happen anytime soon! 

I AM BEYOND FED UP, PI**ED OFF AND FRUSTRATED. Moan Over xxxx

Oh sweetie, wish there was something I could do. You could start throwing frozen lemons at all of them I suppose.

toxophilite ARE YOU RELATED TO GRUMPY CAT?

OR MAYBE YOU JUST THINK ALIKE!

Thanks for the hug, hope you are having a good week xxxx

I imagine hubby probably thinks I am, especially first thing in the morning!!!

No, been a rubbish week. 

BUT, day off tomorrow going to Portsmouth for some shopping and eating.

Need to go bath and sleep. When I stop dripping long enough to be able to think about moving.

This is where I got it from. And I've wanted to throw a few this week. But I managed to restrain myself and make do with a snarl.

Hope you have a better weekend than you're expecting

xx

I was thinking of you earlier Londonlass.i was in a church with my choir and lots of others filming for Songs of Praise.everyone was hot and bothered as we had to keep doing things over and over but I had 2 of the worst hot flashes/sweats I've had  so far.i was dripping.i can only hope that the cameras weren't near me at the time or that they happened when something went wrong with the filming and it was redone.it was horrendous.

Anne(aka the sweat monster)

Hope you enjoy hour shopping trip tomorrow toxophilite, sounds like you could do with a bit of retail therapy! Sorry to hear you have had a rough week......

Sweet dreams Hun. Hope you sleep well xxxx

Unknown said:

I was thinking of you earlier Londonlass.i was in a church with my choir and lots of others filming for Songs of Praise.everyone was hot and bothered as we had to keep doing things over and over but I had 2 of the worst hot flashes/sweats I've had  so far.i was dripping.i can only hope that the cameras weren't near me at the time or that they happened when something went wrong with the filming and it was redone.it was horrendous.

Anne(aka the sweat monster)

I think I probably look worse than this! But as I keep being told, it's 'just' a hot flush!!

Offering you a (((((((((((((supportive but slightly sweaty hug)))))))))))) Hope you get some sleep tonight Hun xxxxxxxxx

Yep.thst was me alright.i thought my sweats and painful joints were getting better but since my knees are killing me tonight I'm not so sure.lets hope we all get some sleep

Anne