AWAKE.........

LondonLass

Love that quote, it's so true!

Good luck tomorrow and huuuuuuuge hugs x

Hi everyone, just checking in. Not been on for a few days, I feel a bit embarrassed admitting this, but sometimes I like to pretend that I don't have cancer, so I don't come on here, particularly when I'm feeling weepy, which I have been. It's making me cry writing this. I hope I haven't offended anybody. I know it's complete denial, but sometimes it's the only way I can manage.

Anyway, moving on. I must be the only person that isn't having any major problems with the site. I can get on fine, read everything, this will be my first post though and I haven't tried a picture yet. Although I do keep getting an annoying orange box saying I've been disconnected and they are trying to reconnect me, when I haven't.

Sorry to hear some of you have been down LondonLass, Optimistic, or rescheduled Eddiboy, that must suck, getting yourself all geared up for your op, then suddenly sorry, it's postponed.

Going to try a picture. Hugs to everyone.

Well what can I say other than I think.........

I just feel completely overwhelmed and in a total stew about this bloody appointment tomorrow! It's just the usual check up but I know I need to mention the pain I have had! Which in turn 'might' lead to further investigations or maybe worse still they will say just up your pain meds and not take me seriously?! Am I imagining the pain? Should I even bother to mention it? But if I don't I have to live with the worry for another 3 months, at which point my next scan will be due!

See too many thoughts going on at the same time! It's driving me nuts, the only saving grace is that my appointment is at 10.20 so not too long in the morning to get too upset!! I hope!!

Its been a tough and lonely day today, nobody was around to chat with. They were working or busy with family stuff! I felt a bit swamped and very lonely! So here I am moaning away and hoping that by writing it down it will stop me feeling so sick!! 

I know there are others who are a lot worse off than me, so I hate moaning like this! But right now this is quite a big thing for me! Roll on Thursday and I'll be back on track..........Hopefully!!

, Jane I totally get the needing space and time to yourself. It's okay to pretend that Cancer isn't part of your life. But remember we are here for you during your good days and bad. Happy to offer a tissue and a (((((((((((hug)))))))))))) whenever you need it! Xxxx

hope you had a better day! Xx

Optimistic, How are you doing today? Xx

Eddiboy, How was getting back to work? Xx

GBear, how you getting on with the pain and sleeping? Xx

JoDec, Long time no see, how are things? Hope you aren't working too hard! Xx

Too everyone else. Hope life is treating you well and fingers crossed the site bugs will be sorted soon. I have managed to come straight on and read posts tonight. So fingers firmly crossed. Because I miss you all xxxxxxxxx

Hi London im ok been to doctor who said blood test tested strongly for celiac but what's me to see specialist with a view to camera in mouth to confirm. I was very brave with colonoscopy but I don't think I can do this with no sedation. Anything over my mouth or feeling i can't breathe and I think I may panic  have to eat gluten for now until this test so making most of normal food while I can  

I think you'll feel better when you mention the pain at your appointment. I'm sure it wont be anything but you'll feel better getting an opinion on it. I know it's not the same but anything i mention seems to lead to investigation at the moment. I'll think of you tomorrow and you'll definitely have LP there. It's another appointment but you'll do it and it will come and go  xxxxx

LondonLass . hope all goes well tomorrow ... sending lots of hugs xx

LondonLass

Hi Sal

You know you have to say something. Waiting 3 months for your next scan will drive you nuts.

No doubt LP will be with you.

All the best. 

Sue xx

You know you must mention this pain tomorrow ,otherwise you will fret for another 3 months ,but I understand how easy it is to be in denial,as soon as you mention it to doctors you can’t t “ go back “.  Everything does seem to lead to more tests , with the worrying waiting , I am sorry you felt so alone today , if your imagination is like mine it is running away with you .....I hope you get good news tomorrow , and some sleep tonight .

optomistic .....that does not sound a fun investigation ! But if it leads to a diagnosis that is not cancer ,perhaps that is a plus ......I hope you get sorted out quickly .......

best wishes to you all , whatever you are waiting for , I hate what cancer has taken from me .......x

Wot Sue said Sal LondonLass

Sending Marmalade over to cause mayhem .........

Hello LondonLass, i seem to be sleeping better at the moment, still get the odd restlessness. I have my mri on Thursday for my head,. I have my other appointment on Monday. But thank you for asking. I do hope everything goes ok for your appointment tomorrow i am sure L.P will be with you. I am still getting some technical problems happening on the site but they do at least seem to be reducing.

sending some gentle hugs and encouragement for tomorrow 

Evening all,

Announcing a mini meet up in Manchester Thursday 19th July 11.30am in Moon Under Water pub Deansgate.

People coming so far are Optimistic  and me. We wondered if seaspirit44 or any other northern Froot Loops wanted to meet up for a brew and a natter.

Aww LondonLass so wish you could join us, I have my blue angel on my key ring so always thinking of you. The appointment will soon be over and yes probably you should mention the pain but part of me thinks oh stuff it and just enjoy the summer a bit longer. Will be thinking of you tomorrow xx

 absolutely brilliant plan, because I bet lots of people are trotting around with things wrong with them completely oblivious xx