Hi guys.
As the title suggests, I live alone and start chemo Tuesday. I have the most amazing family but unfortunately they all live an hour at least away. I am stubborn as they have offered to help when I have needed but I prefer to face some things alone. I can cry when I want, sing when I want, sleep when I want - they understand. My son, who has a family and two jobs, has been there on the most important appointments, the ones where I go into my 'I don't understand' mode, so he has helped me make the biggest decision of all, go for Chemo.
And so it begins with the picc line tomorrow, and then Chemo on Tuesday. I was wondering if anyone else lives alone and dealing with the problems that we now face. I have my hamster, Krakers, for company but I will even have to leave him alone and goodness knows how I am going to deal with his cleaning etc.
Sorry to keep going on but I have so much whirling around in my head.
Thanks Guys
Sorry you have to go through this alone. I fully understand how you must feel as I am feeling so guilty putting my family through this ordeal. At one point I thought of moving out to spare them all this. I still keep pushing away my close friends but I am sticking to only two of them.
The good news is that you will not be totally useless during chemo. The first 2-3 days are usually the worst so I notmally get everything on order (groceries, laundry, housework, etc.) a day or two before my weekly drip. Then I am useless for a couple of days after which things start getting better.
Later chemo sessions could get more difficult so I urge you to consider pushing the sessions to Fridays so that someone can join you during weekends if the need arises.
We're here for you so pls always stay in touch with updates.
Big big hug
I didn't know you couldn't handle a hamster.... :( poor you.....not even with gardening gloves on?
I'm sure people will help you if you need it, don't be afraid to ask for help.
Anyway you are not on your own, we are all here for you.
Love to you and your furrry little mate
I fully agree with Helen. Pls do ask for help. People don't know how to deal with us and are scared to pry. After 4 long months I realised this truth. Apart from physical help we are here for you with support and tips.
Lots of love and warm hugs
Hi Baki thank you so much for your reply it was so helpful.
I can face this, I think, and as I live alone it is just my mess thank goodness. When life was normal I used to go to my mummies, an hour and a quarter drive, to see her and have some girly tlc. I have explained that my visits will be a little erratic now. She is planning a big family dinner on the 10th July and my son has said he will sort my hair out for me before then for the great unveiling as such.
Please don't feel guilty Baki your family and friends are there for you. Let them in and let them help, they want to and it may be a way of helping them to cope. My mum doesn't drive and is worse than me for emotions, she says she can't help but she helps me financially, and has even cooked me a couple of chicken pies (her speciality, fingers crossed for some taste buds!!!) and her cuddles and love help me beyond words.
I was wondering about the order of feeling grotty and then able to do stuff.
Thank you again Baki and please keep in touch.
Best Wishes, Debs x
Snowys Mum said:I didn't know you couldn't handle a hamster.... :( poor you.....not even with gardening gloves on?
I'm sure people will help you if you need it, don't be afraid to ask for help.
Anyway you are not on your own, we are all here for you.
Love to you and your furrry little mate
Hi Snowys Mum
My nurse was very hesitant about my handling Krakers, she advised to try and avoid it. I was more concerned by the cleaning of him, weekly and a little tidy up every few days, but she said that with latex gloves I can do him the day before my cycle starts and then on week three, my poor little precious.
I am a very happy bubbly person generally and even through this I'm not too bad, although the treatment has started yet. I have read so much on here and feel so lucky to only have the bit I have.
I have found friends here and comfort and the majority of the people I have met thru my Blip have been wonderful, kind and caring
loadsa love Debs x
Unknown said:I fully agree with Helen. Pls do ask for help. People don't know how to deal with us and are scared to pry. After 4 long months I realised this truth. Apart from physical help we are here for you with support and tips.
Lots of love and warm hugs
Thank you so much Baki xx
Hi blipandme,
I also live alone and am just coming to the end of radiotherapy - I had lymph node surgery, then FEC-T chemo, then lumpectomy, then radio. Plus herceptin. I've been fine, so please don't worry! I know I've been lucky, but I never had a single day when I couldn't do my own cooking, washing, shopping etc. Sometimes I really, really didn't feel like it, especially when the side effects meant eating was painful or my feet were blistered, but even that wasn't completely unbearable and it only lasted a few days at a time. But I was never actually physically or mentally prevented from doing anything that was really necessary. So I never really needed to ask for help. However I did ensure that I got myself to a place where I was comfortable that if I did need help, I would ask for it, and I reassured friends and family of this so that they didn't worry that I was in desperate need and just pretending to be ok!
I have a cat and a horse. Through chemo I dealt with them as usual, feeding, cleaning, horse riding when I could. I wore gloves and used antiseptic wipes, and I tried to avoid getting bitten (although to be honest I always try to avoid that ) but other than that no special measures. I did make sure there were friends on standby in case I was struggling at all, because obviously the animals were depending on someone feeding them etc, but I actually managed fine in the end. My nurse was fine with all this, as we agreed the mental health benefits far outweighed any infection risk, and I was careful.
I went to all treatments for chemo etc alone because that's what I preferred, I liked chatting to the nurses and other patients, I didn't feel I wanted looking after or entertaining, and I find I get a lot more scared when I have someone with me for 'support' as I start feeling as if I must need support if they're there! On my own I was totally fine and not really worried by any of the actual procedures. That's just me and everyone is different but I just mean that if you actually want to do stuff alone, as I did, it's probably totally doable. But again, I did always have someone on standby for unexpected eventualities or if I changed my mind. I had someone stay over after surgery as the hospital insisted on it.
So I guess my experience was that I wanted to carry on as normal, which meant doing a lot of stuff on my own. That was fine, but what was really important was to be comfortable with the idea that I might need to ask for help, to have people lined up to help if necessary, and not to feel in any way that I had failed or given in if I did decide to ask for help at any stage. Also, I found that a tonne of people were so desperate to have a role of some kind as they felt like spare parts and just wanted to do something for me, to help them as well as me to deal with the situation. So I sometimes asked for help with little things that I could have done myself, and people actually really appreciated that and jumped at the chance. I realised that this wasn't just my 'journey', it was part of theirs too - they had a sibling or best friend with cancer, and that's scary enough without feeling completely unable to do anything to help. Again, just my experience and how I chose to deal with it, but I hope at least that's some reassurance that you will hopefully be able to manage things as you want to - and if not exactly as planned, you might find the alternatives aren't as bad as you fear!
Really good luck with your line and first chemo. It does go amazingly quickly once you get into the routine of it, and you'll soon get a feel for how it affects you and what you can / want to do at certain times.
Sarah xxx
Hi Sarah,
Thank you so much you have put my mind at ease especially with regard to looking after my furry best friend lol.
I have nearly always been independent even though I know I have the love and support of my wonderful family. I know I can do this as its just my blip.
I have just finished watching The Big C and Me and although I shed a few tears it was also enlightening as to see other peoples copy strategy.
I have had the surgery a few weeks back and stayed with my son and his family for a few days. Once my scarring improved I see the Onco and was told I was borderline for Chemo. I entered into a trial called Endopredict and had to wait a few weeks whilst they did various tests. By the time I was due a return visit to the Onco the results had not come thru so I decided to take control and told them I wanted Chemo so that I had given my body the best chance possible to be cancer free.
You sound like you have been thru a terrible time and thank you for sharing your experience with me. How are things with you now????
Loadsa love Debs x
Hi Debs. I don't know anything at all about looking after hamsters but I do have 3 indoor cats. I looked after them all through chemo, including changing their litter trays once a week and emptying the poo out daily. I wore rubber gloves and a paper face mask (to prevent inhaling any litter dust) and of course washed my hands thoroughly afterwards. Apart from that I had bottles of alcohol wash around the house and cleaned my hands with that frequently. No infection problems at all.
As for being by yourself ... I completely understand as I'm a bit of a loner. However, there were times when I really needed help. I was quite ill with side effects and very weak and fatigued. Changing the bed was beyond me as was any kind of heavy vacuuming. At times I wasn't fit to drive. I am blessed to have a supportive husband and some very good friends who all got me through it.
Generally I found that people really want to help but often aren't sure how to. I'd suggest letting one or two friends be part of your journey and then you'll at least have someone to turn to if needed.
Wishing you all the best.
Lynn xx
Hi there,
I live alone too. I have always been a very independent person....I am usually the person everyone else goes to for help.
My son came with me to the first critical appointments.
After that once News got around there were so many genuine offers of help that I felt really humbled & I resolved to ask people in turn....to help me.
In this way I can contact someone & ask for a lift & if they can't do it they know I have a long list of people to ask...if no friend is available then the fall back position is that my son would have to take time off work or send one of the people who work for him!
I have people phone or email reminding me of their offers of help.
Some visit for a cuppa....they know which cupboards things are in & how I like my drinks!
My stylist has been magnificent...she initially cut my hair shorter 'for the summer' & when I was finding handfulls of hair she shaved it to give me a "Judi Dench" hairstyle....& did not charge me...
Learning to ask for & accept help has been hard, but well worth while!
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