I still haven’t seen my specialist but my gp has now told me I have over 12 lesions on my brain. Has anybody else had this many diagnosed? My poor babies.
Not me personally, but Kris Hallenga the founder of Coppafeel has been living with incurable cancer for over 11 years and she has had over 50 brain lesions treated. I believe her brain mets are currently stable.
I found this time in between diagnosis and being able to talk to my onc unbearable, I cried so much and dr google did not help! When I did see my onc it turned out my case had been discussed at the MDT and there had been a treatment plan worked out, I had surgery 2 weeks after diagnosis.
Until you see your onc there are just too many possibilities. Your GP has access to your results but isn’t a specialist
Hi there, well I have greater than 20 mets apparently! Started on radiotherapy today but won't see my actually consultant until 1st july. I found out after A&E visit and a 10 night stay to stabilise.
Only spoke to the ward oncologist while I was in hospital it all happened very suddenly! He sorted the MDT meetings where they decided whole brain radiotherapy and booked me in for everything to start, I have appointment booked with my original consultant when it's complete where I'll know if any further treatment available!
