I have secondary brain mets from kidney cancer. Tumour is in my midbrain/pons so inoperable. I’ve had gamma knife and the swelling has reduced slightly. Issue is, the tumour causes double vision, lowered hearing, left side weakness and everything is hard to do, even putting one foot in front of another. I just can’t cope with the constant double vision or refoccusing which is obviously tiring my brain out. I feel like I’m just dying in front of me and my family.
Has anyone got any helpful suggestions
Hello , I haven’t the brain mets or experience that your looking for, but having noticed your unanswered post I couldn’t click past it unanswered. It must have been difficult for you to make the post with your double vision problems. I was wondering as no one in the group has experience to share wether the ask an expert section or the Macmillan support line of 0808 808 0000 would be an idea.
I’ve put the link to ask an expert below for you to click on.
https://community.macmillan.org.uk/cancer_experiences/ask_the_expert/ask_a_nurse/discussions
Take care
Take care KT
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2024 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007