Full brain radio

FormerMember
FormerMember
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Hi there, I'm 33 and was diagnosed with triple negative breast cancer just over a year ago ... About 5 weeks ago I had horrendous headaches and severe vomiting have been diagnosed with secondary brain tumour I've had surgery to remove a 3cm tumour and I'm waiting to start full brain radiotherapy to treat 2 very small lesions, looking for some advice regarding the radiotherapy as I'm quite worried about cognitive issues afterwards also did every e lose ll of their hair? Thanks in advance. 

  • FormerMember
    FormerMember

    Hi my 68 Yr old husband has secondary brain mets, lung cancer. He finished 10 whole brain radiotherapy today. He has been good, apart from fatigue. His hair started to fall out 2 days ago. All the best. 

  • Forgive me if you’ve already gone through these options with your team but you seem like a good candidate for SRS, which is more targeted and doesn’t affect otherwise healthy tissue.  

     I was diagnosed with brain mets a year after starting treatment for breast cancer had surgery and srs. I had further surgery 16 months later for a recurrence again followed by srs. I asked about whole brain and my radio oncologist said that they would keep that back as an option for the future he also said that breast cancer is particularly responsive to radiotherapy. I am currently waiting on the results of my first post treatment scans 

    SRS has had zero side effects for me

    all the best katherine

  • FormerMember
    FormerMember

    Hi how should I feel after brain radiation I finished 5 fractions Friday.. My balance has gone. My head is so fuzzy... I keep cryingg.

    They said I could feel worse I do. Is it the cancer making me feel like this???

  • My mum has foggy brain and balance issues after brain radiotherapy, so it could be the treatment rather than the cancer. It may improve as the radiotherapy keeps working for a few months after treatment which gives side effects and good and bad days. It is hard not to think the worst and very frightening I know but it could just be the radiotherapy doing it's job. Can you talk to your Macmillan nurse or a contact where you had the radiotherapy for support? Be kind to yourself, you have been through a lot.

    Big hug. 

  • My mum has foggy brain and balance issues after brain radiotherapy, so it could be the treatment rather than the cancer. It may improve as the radiotherapy keeps working for a few months after treatment which gives side effects and good and bad days. It is hard not to think the worst and very frightening I know but it could just be the radiotherapy doing it's job. Can you talk to your Macmillan nurse or a contact where you had the radiotherapy for support? Be kind to yourself, you have been through a lot.

    Big hug.