Hello all,
iVe just completed ten days of radiation to the head/brain after tumour removal early March. It’s the second operation at that site - apparently it’s a stubborn one! I’m weening offf steroids now and the headaches are fading. First brain surgery was Nove 2018. I have had three lots for radiation and was told they will scan in six weeks and hopefully the radiation will have worked, however, if it hasn’t then I annoy have more radiation or surgery as that area is pretty mashed up and no surgeon would want to operate there again.
im wondering what other options would be available to me - chemo was mentioned but they are not confident it would work because of the blood/brain barrier. I was diagnosed may 2016 with nsclc and had surgery to remove in nov 2016. Was clear for nearly two years before being found in the brain.
I have had balance problems and fallen a few times now. Last time was just a couple of weeks ago and I’ve really lost confidence when moving around - it doesn’t help that I’m icsolating so muscle are very under used.
inasked at the hospital about getting a crutch and was told I had to get my doctor to do a referral - appointment booked with doctor for Friday - I hope I won’t have to wait ages to see someone and get measured up!
if any of you lovely people can offer any advice or suggestions on hat may be available to me I would love to hear from you.
keep strong!
Diana x
Hi Diana
I hope you don't mind me popping in, as I'm not a member of this group, but I noticed that your post hadn't had any replies yet.
I'm afraid I don't have any experience with treatment for secondary brain tumours but I've found this information from Macmillan for you.
I've tagged my fellow Community Champion buttercup01 into my reply to you, as she has had secondary brain tumours and looks after this group and might be able to help you further.
I hope your appointment with your doctor today went well and he's got a crutch on order for you!
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
