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I'm on treatment 22, with 8 left. The last few weeks , I've felt fine, abit frustrated at how well I've been, but then took ill and was really sick and admitted to hospital for a week. After scans they found more swelling and another bleed. 1 week later...
I posted in here about my daughter - late 20s, two young children - and her grade 4 terminal glioblastoma. The response that I had from the community was beautiful and helpful. Thank you. But, the update is not good... After 30 sessions of chemo and...
Hi my 19 year old son has just had a Medulloblastoma tumour removed and is going through radiotherapy atm. We are devastated by his diagnosis and as this is usually a child’s tumour type haven’t found any adults out there with the same tumour yet??...
Hello. My son had a seizure out of the blue in May 2023. He was taken to hospital and blood tests done. Nothing strange appeared to be wrong. It wasnt until September that he had a phone call from a neurologist who seemed very surprised that he had not...
Hi everyone. I'm new to the forum and thought I would briefly say hello and ask some questions if I may. Back in July 2023, my Mum was diagnosed with a low grade glioma by the temporal lobe. She had had a couple of seizures which lead to a referral...
I have a diagnosis of terminal brain tumour, which at present affects my memory and balance. Cannot remember anything about my treatment or what the doctor call my cancer. My son has pictures of me in hospital, where apparently I stayed for three months...
Hello, In September my husband had what we thought was a stroke, we went to the hospital and after some confusion as to what hospital we should go to as we live on a border of two County's we went to the smaller one then after 12 hours in a&e and after...
Hi everyone, we were told my husbands tumour came back last March 2021. A year later we are still awaiting an operation that they said he needed a week after diagnosis. We are living a nightmare. We have the GP, our MPs all writing letter to the hospital...
After waking up early hours Friday morning with alot of pressure in both and eyes and and a throbbing head. I managed to go and have chemo and radiotherapy, 5 mins after still felt horrendous. Then the sickness begun. So after having observations etc...
