My husband was diagnosed 2 months ago with high grade glioblastoma. The MDT meeting concluded that because of his medical history it was too risky for surgery and he’s not receiving any treatment. Initially he was quite well and we didn’t need any intervention from District Nurses etc. however he now is struggling with his mobility and we’re stuck in a loop of who to contact about getting him a wheelchair and other support. I just feel as though we’re being left to get on with it and wait for the inevitable.
HI Pattimac
a warm welcome to the community. So sorry to hear about all that's going on.
I agree with the others. Speak to your GP in the first instance.
I supported my late husband through his GBM journey and when the oncologist advised that there was nothing else to be done for G, he handed us back to the local palliative care team led through the GP. The local team were fantastic and to be honest, it was the best support I had in the entire 3 year journey.
This is a safe and supportive space so please reach out here anytime. There's always someone about to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.
You might also want to explore these additional groups within the community - Glioblastoma multiforme brain tumour forum | Macmillan Online Community and Cancer carers forum | Macmillan Online Community. I personally drew a huge amount of support from both.
It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
For now though, I am sending you a huge virtual hug and lots of strength.
love n hugs
Wee Me xxx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
