Hello
I got the information on the 27th December and in hospital until the 30th Decembet aftet all the tests were done
Next stage is the meeting with surgen on Tuesday 13th January 2026 .
He will explain the next to what till be gone to Cruella when I am for surgery.
It affects my speach,language,some maths at different times. Other times I can ok. I understand but do not say the correct word to desrcribe.
I use technology, apps etc. I use Duo Lingo on several languages.
HI Alex26
a warm welcome to the online community. Thanks for sharing your story.
This is a safe and supportive space so please reach out here anytime. There's always someone about to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.
It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
I hope the appointment on Tuesday goes smoothly and that you get a plan in place. Not knowing is a thousand times harder than knowing.
For now though I am sending you a huge virtual hug and lots of positive energy.
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Thank you for your message. I have been busy trying to set things ready as each day passes.
I had a lovely day out lunch and was in the sunshine with the family.
We have plan a few things during this week and hope to go to Kew Gardens, near daughter.
Today is the day I learn about what the surgen is proposing for my treatment.
Hi Alex26, just wanted to say that I totally understand how difficult this time is, and I feel for you.
I hope you have a good time in Kew, and that things went ok with the surgeon. I had a craniotomy four years ago for an grade 4 astrocytoma, and am still stable, so I’m happy to answer any minor questions you didn’t get to ask the surgeon x
Also fyi, I spent a few months after the op getting my language skills back, and even now I struggle occasionally when I’m tired. But don’t despair, keep working on it and don’t push yourself. Duolingo is great for the brain! Wondering what languages you’ve tried?
Sending positive thoughts
Thank you, Leeluu.
A sad day yesterday but be dad a lovery supper!!
Focussed on specific tasks and are calm and on what is goung to happen Everyone is helping us .
We are going out tomorrow, then London on Fri then at Sat Kew for the norning.
Good to hear that your language has after only a few months.
Duo is a great resorce.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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