New and so so frightened and low

Oh sweetie, just get through this horrible period as best you can, and don’t underestimate yourself. I won’t lie, the chemo and radio are not fun, but you will start to recover almost as soon as they’ve stopped. 

I was diagnosed with a grade 4 tumour nearly 4 years ago and I’m still doing ok - nobody can say how things are going to go, even the doctors, and when you can get through this first bit you’ll be stronger, I promise you.

let us know if you have questions are just want to offload or chat - we’re all here for you xxx

Oh thank you so much for just taking the time to reply

I just feel so resentful for anyone that is around me. All telling me how brave I am

I know, because you don’t feel very brave so it doesn’t help. I think people just don’t know what to say, they’re just shocked. I found it useful to be around people who’ve had trauma of any kind, because they’re more often more open and less awkward. 

do you have someone who makes you feel better?

Hey! Youve done the hard part! Had the surgery and the diagnosis! Happened to me in July 2024. After chemo and radio for 6 weeks then 6 months oral chemo Im fighting fit worked throughout, been on a couple of holidays . You will get through it! 

Oh my word that is amazing !!!!!!! Thank you so much x

This is just what I needed .

I’m sorry you’ve received that diagnosis. And it is hard to wrap your head around it. There are many ( look at the very bottom ) support channels and you’re more than welcome to chat to anyone on here. I’ve tried to keep up with my blog, I can recommend it as it help you or it helped me just too look at where you are and express your feeling/thoughts

 we are all here for you

HI Magpie

a warm welcome to the online community. Apologies for not responding sooner.

All these emotions you are feeling are perfectly normal so please don't be too hard on your wee self here. Its a huge thing to deal with emotionally.  Have you been offered any counselling by your CNS or medical team? It might help to speak to someone about how you are feeling.

I supported my late husband through the 3 years of his stage 4 brain tumour journey. (You can read the gist of our story in my bio) G coped really well with the 6 weeks of treatment. His biggest complaint about it was that they squashed his nose with the radiotherapy mask every day. The only side effect he felt from it all was fatigue. Thar kicked in around week 4 and lasted for about a month afterwards He was up and dressed every day but would get caught napping which was so unlike him.

He was a fitness freak but once he had recovered his energy levels he was able to resume running and in fact set PBs at all his competitive distances up to and including marathon two years after his diagnosis. He was able to travel too and went skiing in the French Alps with our daughter, spent a week in Paris with me and had a boys weekend to Prague (I didn't ask too many questions about that one!) 

G was physically able to keep running until a couple of months before his journey came to an end. When he could no longer run he walked for miles every day or cycled on his static bike in the garage. He lived life as much as his body allowed him to and then some!

This is a safe and supportive space as you've already seen, There's always someone about here to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.

It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

For now though I'm sending you a huge virtual hug and lots of positive vibes.

love n hugs

Wee Me xx

Oh thank you for the effort that you are putting into your reply . I feel like I am suddenly living in the worst nightmare possible and so alone