Brain Tumours

Welcome. Of course you are scared. I was in your position July 24, a year ago. After complete removal, radiochemo then 6 months of chemo, I now consider myself cured. 
youve probably read a lot of negative stuff, and sadly not evry one is as lucky as me, but not all stories end badly! 
are you having an awake craniotomy? Do you know ehat type it is? 

Having a full anaesthetic for my craniotomy.

HI Jorge605f9b

a warm welcome to the group. Sorry to hear about all that's going on. It's only natural to feel scared so please don't be too hard on yourself.

I understand the need to see it written down/to say it out loud and I hope that reaching out here has helped a bit.

I supported my late husband through the 3 years of his stage 4 brain tumour journey. He had an awake craniotomy about 5 years ago and coped really well with the surgery itself and was home within 48 hours. 

There's some general info on the main website about craniotomy surgery that might help here. Here's the link What is a craniotomy? | Macmillan Cancer Support

Every brain tumour is unique and no two diagnosis are identical. The people best placed to give you information are your own medical team however here's some general info from the website (its not intended to scare you) Understanding primary brain tumours | Macmillan Cancer Support

For now please try to focus on the facts as you have been told them. Stay away from Dr Google as he's a scary dude. Take this one step at a time for now.

This is a safe and supportive space so please reach out here anytime as there is always someone around to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.

It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

For now though I'm sending you a huge virtual hug and lots of positive energy. I'll be thinking about you on Wednesday and hope the surgery goes smoothly.

love n hugs

Wee Me xxx

Thank you Wee Me,

The 'reaching out' is really helpful and supportive.

Jorge xxx

Hi jorge. I had my first surgery in February this year then 3 weeks later was rushed back into emergency surgery at 2am for a full craniotomy! It’s a scary thing to know someone is going to be opening up your head and messing with your brain!! But believe me… be thankful you’re asleep! As Tashie mentioned they do awake craniotomy’s now!! 

good luck and be brave warrior!