Hi I'm new here and been struggling since my mum had diagnosis of having grade 3 astrocytoma idh mutant beginning of the month after having awake craniotomy.
She started her first week of 6 weeks of radiotherapy then she gets a break before having a years worth of chemo. Since this has happened I feel like I've already lost my mom as her speech isn't the same, forgets, gets confused and generally isn't the same woman as she was. I feel angry and upset as I don't know what the outcome is.
The Dr keeps saying the prognosis results are not back but when you read about it it's says you don't have long!! Just really struggling at the moment as my father's is ill also so having to be there for both of them.
Hi Tool83, welcome and firstly, a very large hug - two ill parents at the same time, that’s a horrible situation and I really hope you have back-up from your family or your parents’ friends 
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It’s early days, and waiting for information is the worse time. I was diagnosed with grade 4 astrocytoma idh mutant three years ago and am doing ok with 6-monthly scans, so there’s no telling at this stage how your mother will respond. Something to bear in mind - I was 50 during my craniotomy and recovered well, but if your mum is older, it could be a slower process. I still have memory issues and my speech slurs a bit when I’m tired, but I’ve adapted (I think!). Be kind to you to your mum, and to yourself, rest a lot, and be angry if you need to - it’s a shitty time. And that’s hard when you say your mum isn’t the same woman, I feel for you. And for her too - I’ve changed in a lot of ways as well, but I will say that not all of them are bad, so just help her get through this traumatic time first. I’m sending love and all good wishes ️
please ask any questions at all if it helps - no holds barred - or just rant, we’re all here, Alex xx
HI Tool83
a warm welcome to the group. So sorry to hear about all that's going on with your parents.
I supported my late husband through the 3 years of his stage 4 brain tumour journey so can empathise with the emotions you are experiencing. It's natural to feel angry and upset as its a lot for you to process and it takes time to come to terms with a diagnosis like that.
I hope Leeluu's post has helped to ease your mind a little.
This is a safe and supportive space so please reach out here anytime. There's always someone about to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.
It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
For now though I'm sending you a huge hug and lots of patience.
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Oh bless her! ️ and of course ‘we’re all going to die’ is true but not helpful to people in this position
That’s good advice, to do what she wants. And also to not do what she doesn’t want to do - I hope she can save her energy for the good stuff x
