As the subject, just found out (wednesday) that I have a 4cm mass behind my nose, going right side.
Had a few days in hospital waiting for neurologist to look at my CT and MRI scans. Yesterday (Saturday) had a brief but good chat with my surgeon.
My surgery is booked in for the 31st Jan.
Hasn't sunk in yet, don't think it will until I'm being prepped for theatre.
Do I need to make any changes or adaptions at home for when I come out?
I'm 46 and just myself and hubby at home.
The cats have already got the roles of lap hot water bottles.
HI Bay Arabian
a warm welcome to the group. So sorry to hear about all that's going on. It's such a lot to take in.
I supported my late husband through the 3 years of his stage 4 brain tumour journey so an entirely different situation. He had a craniotomy two weeks after his initial diagnosis and was home within a couple of days. We didn't need to make any adjustments to our home as a result. We were advised at the time that he was not to be left alone for a few days just in case and that he shouldn't go out on his own for a couple of weeks. G being G totally disregarded that and would disappear out for hours within a few days.
I'd suggest that you write down all your questions, fears/concerns and take those notes to your pre op appointment. There's no such thing as a silly question. If its preying on your mind, ask! You should be sent home with clear instructions and a follow up plan or appointment. There's some generic info on the website that might help. Here's the links Treatment | Macmillan Cancer Support and Meningioma in adults | Macmillan Cancer Support
This is a safe and supportive space so please reach out here anytime. There's always someone around to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.
It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
For now though I'm sending you a huge virtual hug and lots of positive energy.
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Gosh, they do move fast at the hospital don’t they? No wonder it hasn’t really sunk in. I’m glad you have hubby as support, you’ll probably want to take it easy for a while after your op (months in my case) so let him look after you. It’s a tricky line finding when to rest and when to get some gentle exercise. I remember being told to get up and walk around very early on, and it did help my recovery, just don’t overdo it
I had a craniotomy nearly 3 years ago for a grade 4 astrocytoma, and am doing ok, so I’m trying to remember what was useful for me at the time. Don’t forget a phone charger obvs! If only you could take the cats into hospital with you 
️ but they will be a big help afterwards - mine was
I reduced my socialising quite a lot after the op - just because people want to visit doesn’t mean you have to let them, it can be more tiring than you realise
thats all I can think of for now but any questions, thoughts etc, we’re all here,
Look after yourself, mentally and physically, a big hug from Alex xx
