Hi all, my mam was diagnosed with glioblastoma in Dec unfortunately she's not medically fit for treatment, she's currently in nursing home,
She was only giving 2 months max to live, it's really so hard as her cancer is on her frontal lobe where it effects her emotions judgement and behavior. I'm really struggling I'm going to ring palliative care on Monday as I think she needs to be assessed and giving something for her agitation. It's really awful to see and it's not her in the bed. It's the cancer talking. Anyone else going through this to?
Thanks
HI Magpie26
so sorry to hear about your mum.
I supported my late husband G through the 3 years of his GBM journey and for the last 3 months or so he was quite agitated. Our local palliative team prescribed a low dose of Lorazepam once a day and that was enough to just take the edge off it.
These tumours are evil and they do steal the person from you in stages. It's so hard to watch. I can totally empathise with what you say. By the last few weeks of G's journey I was living with a very broken stranger who bore little resemblance to the man I'd been married to for 28 years.
Hold onto the good memories. As you say, just now its the tumour talking, not your mum.
Please remember that this is a safe and supportive space so please reach out here anytime. There's always someone about to listen who gets it, someone to hold you hand and to offer a virtual hug when its needed. You're not alone. We'vw got you.
It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
For now I'm sending you a huge virtual hug and lots of strength and patience.
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Thank you so much, I've been reading your stories, I'm so sorry for your loss, it's a horrendous disease.
My mams battled with breast cancer twice the last one April 2022, she went through tough chemo and radiation. Then she was in remission.
November last year she was having seizures I thought she was having a stroke as it was effecting her right side,
December has surgery unfortunately she thought she could get out her bed in hospital and fell popped her hip out twice had surgery to put that back in she has a brace on her leg to support. With this tumor she think she can get out of bed, today and yesterday she was just awful to me, unfortunately it took its toll on me today I just broke down, besides all of this ik trying to sort everything with her house try and plan a funeral.
I'm going to speak to palliative care on Monday at the hospital she needs to be assessed.
I spoke to the nurse in the home she says she's ok. She's not ok, I know im her daughter.
Hopefully we can get someone out to assess her and get her some medication to calm her down.
Fingers crossed we get somewhere 
Thanks again I really appreciate it
Xxxx
