New to all this

Dear Licencek, how frightening for you both. I’m so sorry this is happening to you. Do you want to tell us more about what happened? It’s all up to you

All I can tell you now is that I was in your husband’s position three years ago. I had a chunk of the tumour removed, then chemo and radiotherapy, and am doing pretty well for now. It was the scariest strangest time of my life, but I’ve found myself coping better than I would ever have imagined (not all the time, of course, but..)

There are so many things to process, and to find out, and it’s early days. Whatever questions you have, just ask, no holds barred. And if you’re struggling, ask for help from whoever’s offering. But for now take care of yourself and I’m sending you a big hug. Be strong, be scared, be angry, be whatever you need to be, you’ll get through this,

Alex xx

Hi Alex

Thank you for the reply. We are in the very early stages. We know it’s a tumour but that is all. Hubby has slurred speech and is very unstable on his feet. All I do is cry. 
Your reply offers hope.

thank you.

Honestly, this might be the worst part - the confusion, the suddenness, the world turning upside down. There’s so much to find out, which will eventually make you feel less lost. Where the tumour is, what type, what can be done etc. 

Meanwhile crying is such a normal response - go for it, just try and eat and sleep too. How is your husband doing? Sending you both love xx

Theres plenty of hope. I was diagnosed in July, surgery in August and I am doing fine, working and enjoying life. Seems to be a thing that for every positive, theres lots of negatives! It isnt always that way! 

Hi

Hubby not good today very emotional, slurred speech and unsteady on his feet. We have his appointment through for next week. He is seeing the oncologist and having a pre assessment for surgery. I’m guessing this maybe a biopsy. 
Thank you for listening. 

I was diagnosed with a brain tumour on 17th dec, with surgery planned for Monday. It was a huge shock but i've tried to do practical things, look after my body, sleep. Ive started a journal because i know it helps me to write things down. I'm trying to surround myself with positivity and asking the right people questions, not Dr google. My hubby finding it hard i think. Hopefully you'll get to speak to someone soon, its good to write down all your questions, i found when i got answers i started to come to terms with things. 

HI Licencek

a warm welcome to the group. So sorry to hear about your husband's diagnosis. Life's too cruel.

There's plenty support here as you've already seen. This is a safe and supportive space so please reach out here anytime. There's always someone around to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.

Not knowing exactly what you are dealing with is a 1000 times scarier than knowing the facts. I've been there. I supported my late husband through the three years of his stage 4 brain tumour journey so I can empathise with how you are feeling right now.

For now, focus on the facts as you have been told them. Steer clear of Dr Google - he's a scary dude. There's some generic information on the main body of the website that might help. Here's the link Understanding primary brain tumours | Macmillan Cancer Support

There are thousands of different tumour types and it is all too easy to automatically assume the worst. I get it.

Between now and the appointment can I suggest that you write down all your questions, fears and concerns and take those notes to the appointment. They can act as a script/checklist and help make sure that you don't forget to ask something that's important to you both. There's no such thing as a silly question. If in doubt, ask. These initial appointments can be quite overwhelming and its easy to forget to ask stuff.

It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

For now though, please take things one step at a time.

Sending you a huge virtual hug and lots of positive energy.

love n hugs

Wee Me xx