Hello to everyone my husband was diagnosed with a metts brain tumor from his lung he had his right lung removed 6 years ago had some chemo he was doing ok but in September 22nd he had a fit in our lounge and taken to hospital there he was diagnosed with the tumor he went to see a surgeon who said he could remove it 3 days later they took him in for surgery but the anethatist said no as he caught covid in hospital he Woolf do it in 2 weeks but then got a phone call the week after asking us to go to see oncologist he said there was nothing they could do no radiotherapy chemo targeting therapy clinical trial nothing just 3 to6 months then sent home day later phone call there was a second opinion they now think the tumor has not spread into the menengis of the brain so he can have stereo radio therapy surgery but he couldn’t lie down properly so they couldn’t fit the mask but they did a loose one to have 6 sessions of radiotherapy he finished it last week but it really has taken its toll he’s asleep a lot of the day we’ve had a real roller coaster of ups then downs I asked his oncologist what type of tumor it was and what stage as how can they treat something they don’t know what it is they can’t do a biopsy either been referred back to lung cancer oncologist don’t know why and back to the cancer centre in two weeks it’s the not knowing that I can’t understand how can you treat something you don’t know what it is I’m sorry it’s such a long post any advice would be appreciated thanks
HI Isszy
a warm welcome to the group. So sorry to hear about all that's going on. Life's too cruel.
As Tashie has said the medical team can tell a lot from an MRI based on their experience. When my late husband was going through his initial diagnosis the neurosurgeon could tell us with 99% certainty from the scan images what kind of tumour we were dealing with.
The fatigue you mention is likely a side effect of the radiotherapy. G had 6 weeks of radiotherapy and oral chemo and by week 4 the fatigue had set in and lasted for about a month after the treatment ended.
You don't mention when your next appointment is but before then I would suggest that you write down all your questions, fears/concerns and take those notes with you to that appointment. The notes will act as script and help to ensure you don't forget to ask something that's important to you. I worked on the premise that if it was worrying me then I would ask about it.
This is a safe and supportive space so please reach out here anytime. There's always someone about to listen who gets it, someone to hold your hand and someone to offer a virtual hug when its needed. You're not alone. We've got you.
It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
For now I'm sending you a huge virtual hug and lots of positive energy.
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
