Oligodendroglioma grade 2 treatment

Hello Casey

I think I read your story on a Facebook group just before I took a wee break from social media (it's been refreshing and needed).
Much love to your partner and family.
All sounds extremely similar to my own situation too! Hope surgery went well for him! Ive found the inbewtsween times difficult too! Reach out to your macmillan or nurse specialist to see what help and support is out there.
I was good for a few weeks/months then symptoms showed again despite my MRIs indicating that the post op boundary was stable. Honestly, I know it's easier said than done but enjoy 'normal (new normal)' life while things seem 'normal'. You never know what around the corner.
So glad he knows the triggers and signs of his focal seizures and that these are managed. 
They can often (and were initially aiming to) follow the watch and regular scans approach too. So that may be the 'treatment' alongside anti epileptic drugs for now. Hard to tell. 
ANY questions note them down and reach out/ask when you can. Or things he says and too. 
In my experience I am SO bored,. I am a nurse so being off work and the change to being the patient I have found extremely difficult. It's difficult when you're in your 30s but hobbies and things to do or input from Occupational Therapy may help? Again, in my experience platforms like this can help, and sometimes really REALLY don't. Just what works for him, and for you too!
A x

Thats great! Im currently on 1000mg morning and night and they've helped (I don't know), I had none for ages then tonic clonic ones out of the blue a few weeks apart (all this post op), but I get strong focal seizures before hand so I know its going to happen. That fear. Is. HORRIBLE. Just have to ride them out and reach out for any help you can and try to remain and knowledgeable, safe and remember there are still other options, increase in dose, other drugs, radio, chemo.
We could die when we're 40 or 90, a fulfilled loved fun life, or a dull boring one. I live in Northern Ireland so we work things a little different sometimes too. 
It's difficult and I wish I knew what to say but please feel free to ask anything if you feel it helps x