Hello

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Hello all, just joined the group. My husband was diagnosed with glioblastoma gd 4 in February 2022.  Since the weekend everything has changed dramatically.  Just reaching out at the moment as feeling rather overwhelmed 

  • HI Maggiemoo

    a warm welcome to the online community. So sorry to hear about your husband's diagnosis. 

    I'm supporting my husband through his GBM4 journey. He was first diagnosed in Sep 2020 and its been an emotional rollercoaster ride ever since so I totally get where you are coming from. 

    I've personally drawn a lot of support from this community and I'm glad you've found us. Its a safe and supportive space so please reach out here anytime. There's always someone around to listen who gets it, someone to hold your hand and to offer that virtual hug when its needed. You're not alone. We've got you.

    In your own time you might want to explore a couple of the other groups- Glioblastoma multiforme brain tumour forum - Macmillan Online Community and Carers only forum - Macmillan Online Community

    It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

    I shared my/our story in a blog last year for MacMillan. Here's the link Caring for a partner with a brain tumour – a Community member’s story - Macmillan Online Community It may resonate with you.

    Feeling overwhelmed is totally natural and some days those feelings land like a ton of bricks out of the blue. It's the strongest most resilient among us who recognise those emotions and face them. They'll pass. You're coping so much better here than you give yourself credit for(you'll just need to trust me on that one)

    Please make sure you are taking care of  your wee self here. This is a gruelling rollercoaster ride and after almost 3 years, I don't mind admitting I'm exhausted - mentally, physically and emotionally. Taking a bit of "me time" isn't selfish so please take time to recharge your wee batteries, even if its a quick coffee with a friend or 10 minutes sitting with a book or a walk round the block.  

    If there's anything I can answer to help here, just ask.

    For now though I'm sending you a huge virtual hug and lots of positive energy. Stay strong.

    love n hugs

    Wee Me xx

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm