Day by Day

Hi, so sorry to hear your news. Those first few weeks are so difficult. I remember the shock and just crying constantly. My husband was diagnosed May has had operation early July and just finished chemo radiotherapy for 30 days. We are trying to take each day as it comes and take support and help from family and friends. He is doing ok following this treatment now on a month break before he starts next lot. Stay strong and this is a great place to share and realise you aren't alone so many people facing the same awful illness and it helps. Sending you a virtual hug and keep in touch. X

HI Daybyday

a warm welcome to the group, So sorry hear about what you are going through. I can empathise with the journey you are on.

My husband (then 50) was diagnosed with a stage 4 brain tumour in Sept 2020. He had an awake craniotomy to debulk the tumour followed by 6 weeks of oral chemo/radiotherapy. he coped really well with it all.

Physically he's still in incredible shape. Mentally less so as his tumour was/is in the area of the brain that controls speech/language/understanding. He's far exceeded everyone's expectations and the initial scary prognosis.

Nothing prepares you for hearing that diagnosis. As Sally1 says, the first few weeks are tough. They are an emotional rollercoaster ride. One wee word of advice I would offer is to write down all your questions, concerns ahead of any appointments and take those notes with you. They will help keep you on track and make sure you don't forget to ask something that's important to you both. Those appointments can be quite overwhelming.

This group is a safe supportive space. As you've already seen, there's always someone around to listen who gets it. Someone to hold your hand and offer a virtual hug when its needed. You're not alone. We're here for you.

It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

For now, I'm sending you a huge virtual hug. If there's anything I can do to support please just ask.  Please also take time for yourself here too to make sure you recharge your batteries. Taking "me time" isn't selfish. It's essential for your own wellbeing.

Love n hugs

Wee Me xx

Thank you Sally1, it really does help to share with others and although its not nice to think of others going through this,  it helping me to understand and accept nobody has the answer, im glad to hear your husband is doing ok, sending you a virtual hug back xxx

Hi Wee me thank you for all your kind words and for signposting me support, i hope your husband is doing well. I went out today and had a cry as i dont do that in front of him and it helped. I hope we can all find strength on this journey and stay positive, sending you back a virtual hug xx

Hi

it's the most resilient among us that show those emotions. Cry all your tears. Don't bottle the feelings up. I've cried oceans of tears over the past two years.

Physically my other half is in incredible shape. Absolutely no idea how he's doing it but we're off to London this weekend as he's running the London marathon. That in itself highlights the cruel craziness of his situation - he can run 26 miles but he couldn't read this message or go to the bar and buy a round of drinks (He'd forget why he was there). 

You are coping so much better here than you give yourself credit for (you'll just need to trust me on that)

Stay strong.

love n hugs

Wee Me xx