Hello
I am new here and joined as my mum has recently been diagnosed with a cancerous brain tumour. It's a massive shock to us all as she only went to hospital due to a fall and as she is on blood thinners a CT scan was done. This is when they spotted the tumour.
To say I am devasted is an understatement, we are awaiting an appointment with the specialist to see where we go from here.
She is still in hospital at the moment because she is in no fit state to go home. She is confused and disorientated which the doctors say could be a combination of the fall, anxiety and her brain problem.
She is still having bursts of humour and has told us she doesn't want "the alien" in her head.
I just love her so much :-(
This was 3 weeks ago so here is an update. The tumour is unoperable we are waiting for a nursing home place for my mum and they have said only 3 months which takes us to November.
HI Lallith
a warm welcome. So sorry to hear about your mum. Life's too cruel.
I can empathise with what you are going through. My husband was diagnosed with a stage 4 brain tumour in Sept 2020 and ultimately a terminal diagnosis. He's still physically in incredible shape but is slipping mentally. He doesn't refer to his tumour by name but does refer to his "jelly brain" . There's a lot to be said for holding onto that sense of humour however dark.
This is a safe supportive space so please reach out here anytime. There's always someone about who gets it. Someone to listen and to hold your hand and to offer that virtual hug when its needed. You're not alone.
You might also want to explore Carers only forum - Macmillan Online Community. Personally, I've drawn a lot of support from both groups.
It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
For now I'm sending you a huge virtual hug. Stay strong and please remember to take care of yourself here too.
love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
