GBM4 Any Info on Cerebral Breathing and experiences with Kepra and Bucon ?

Hi . I've a different type of cancer and just dropped by and noticed you've not had a reply as yet. By me replying it'll "bump" up your post to the top of the list. Otherwise might I suggest you change your post to read "Any info on Cerebral Breathing and experiences with Kepra & Bucon?" Then another member may be able to answer.

Sending you and your son all the best. Bx

Hi Mrs BJH

Many thanks for your reply and advice.Hope you are keeping well.

Take Care

Joe

Hi

Just noticed your post. My husband has GBM4 too and takes Keppra as an anti convulsant because he had a seizure last Autumn. He talked coherently throughout and didn’t lose consciousness at all. He was put on 500mg Keppra which was raised to 500mg twice a day when he had another seizure. It seems to work pretty well. Still on same dosage now. Bucon is a painkiller I think. Not used it. Not familiar with Cerebral breathing. 

My husband has a hospital bed too which is easier for personal care.

Its all very daunting dealing with the amount of medical jargon as well as the illness itself.

Best wishes to you and your son.

Llamalover xx

HI Joe

so sorry to hear about your son.

My husband was diagnosed with a GBM4 last Sept and has taken Keppra daily since his first seizure. He's had a few "episodes" since but nothing as scary as the first seizure.  Seems to be doing its job.His tumour was/is in the Broca's area of the brain so impacted his speech and understanding more than physical things. 

Sorry no experience of/knowledge of cerebral breathing so can't add any words of wisdom there.

stay strong

love n hugs

Wee Me x

Hi Liamalover

Many thanks for your reply hope you and your husband are doing well. My sons breathing is very bad any exertions or movements as in walking say 5 metres has him fighting for his breath. His tumour is in the cerebellum but has now extended to the brain stem. Maybe there is a different name for that sort of condition. He has had no seizures as of yet but pallative care nurse has arranged for him to take Keppra. We have been told that this drug can cause many side effects and mood swings. We have appointment tomorrow with oncology consultant praying that he can go back on treatment but his infection still not fully healed.

Take Care

Joex

Hi Wee Me

Thanks for reply we spoke a few weeks ago. Hope you and your husband are doing well. He`s not doing too good last few days just praying that we get him back on treatment Appointment tomorrow .

Take Care

Joex 

HI Joe1956

We're doing ok thanks, although my husband is very down and depressed at the minute (who wouldn't be?).

We never know if its the medication he's taking (he also takes a sleeping tablet and dexamethazone) or the brain tumour itself that gives him mood swings and confusion.. As far as we can tell the Keppra hasn't caused too many side effects, although he is very tired all of the time. I think he would be tired anyway, so not sure if its a side effect or not!

Hope all goes well tomorrow.

Best wishes,

LLamalover xx

hope you get on ok tomorrow.

will be thinking about you. Stay strong

love n hugs

Wee Me x