Glioblastoma

Hi Lavanini

a warm welcome to the group. So sorry to hear about your brother. Life's too cruel.

I supported my late husband through his stage 4 Glioblastoma journey so can empathise with what you are going through. Can I suggest that you speak to the medical team and explain that he's upset all the time? They may be able to prescribe something to calm him down and settle his mood. 

It's so hard to understand what the person is upset about especially when they can't speak. G's speech, language and understanding was compromised from the start of his journey and was noticeably worse by the last few weeks, It made communication difficult as he'd lost most of his eyesight too and the ability to read and write. You need endless patience with them.

This is a safe and supportive space so please reach out here anytime. There'd always someone about to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.

It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

Please also try to look after yourself here. It's exhausting caring for someone on this journey. Taking some time out to recharge your own batteries is essential to help you cope with it all.

Sending you a huge virtual hug and lots of patience.

love n hugs

Wee Me xx

Thankyou. Yes his eyesight has definitely deteriorated blind in left eye.

His speech is very bad and navigate what he's trying to say as best I can.

It's so sad.

Hello

I'm going through the same with my mam, she was diagnosed in December to, she had surgery to remove some of it, last week or so she has gone down hill quite quickly, 

It's an emotional journey, we are all here to support one another, there is some good people on here, reach out, they have helped me out a lot especially wee me she is a super star. 

Any questions feel free to speak up 

Sending lots of love 

Xxxxx