Menigoma grade 3

Hi bee1956

a warm welcome to the group. Sorry to hear about all that's been going on. 

There's a diverse group within this community so I am confident that someone in a similar situation will reach out soon with their words of wisdom. My personal experience lies in supporting my late husband through a stage 4 glioblastoma journey so a different journey to the one you are on. G did have radiotherapy and to be honest coped really well with it. HIs biggest complaint throughout the six weeks was that the nurse squashed his nose every day when the mask went on. The only side effect he suffered from was fatigue which started after about 4 weeks and lasted for about a month after the treatment finished.

This is a safe and supportive space so please reach out here anytime.There's always someone about to listen who gets it, someone to hold your hand and to offer a virtual huge when its needed. You're not alone. We've got you.

It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.

For now though I'm sending you a huge virtual hug and lots of positive energy.

love n hugs

Wee Me xx

Thank you very much for your kind words!

And I'm sorry to hear your story. 

Hugging you back :-)

Hi, my husband is going through exactly the same thing. He had his operation 6 weeks ago and starts his radiotherapy tomorrow (30 treatments in total). He's feeling really well at the moment and very positive. He seems to be dealing with it better than me. Hope you get your treatment plan soon. 

Hi bee1956

Hi...just joined this group and spotted your post yesterday. I had a Grade 3 Meningioma removed in April and as it wasn't benign, I had my 6 week Radiotherapy sessions in June and July. My MRI is due on Nov 24, but I am still currently suffering from many side effects which started during and after the treatment. Notably these include 'Somnolence Syndrome' (for the past 4 weeks), slight deafness and hair loss, amongst others. I am wondering if you decided to go for Radiotherapy after all? ..and how your treatment went, as our timetable looks about similar?

Hi Melbadd68c

I just joined this group and spotted your post yesterday. I had a Grade 3 Meningioma removed in April and as it wasn't benign, I had my 6 week Radiotherapy sessions in June and July. My MRI is due on Nov 24, but I am still currently suffering from many side effects which started during and after the treatment. Notably these include 'Somnolence Syndrome' (for the past 4 weeks), slight deafness and hair loss, amongst others. I am wondering if you decided to go for Radiotherapy after all? ..and how your treatment went, as our timetable looks about similar?

Hi Gary. 

Your post is interesting - I've not heard of many with a grade 3 Meningioma. 

I'm speaking on behalf of my partner. 

Successful surgery, fatigue after which I think was expected. However due to much conversation and research my partner chose not to have radiotherapy. For many reasons. However we understand that people will have there own thoughts on the treatment. 

MRI is due in Nov also ( feeling anxious about it all ) 

We are sorry to hear your symptoms. Will you need further treatment?

Apart from the tiredness my partner is working, unfortunately not driving due to protocol and is doing much better than before. 

Everyday is a blessing  

Yes, a Grade 3 Meningioma is quite rare and so it has been difficult to find anyone else to talk about the treatment with. It is highly likely to return and so, depending on what my MRI shows, I will continue with 6 monthly MRIs to check it's progress.

No further treatment is planned other than these checks, but some of the side effects of radiotherapy can be severe and last a long time, often permanently. It might be interesting to compare the MRI results at the time? Mine is on the 24th and so I should get my 'results' meeting with the Oncologist around 2/3 weeks later

Hi, my husband is doing really well after radiotherapy. No real side affects apart from hair loss. He's back working from home. Now its waiting to see it the treatment has worked, his scan will be in January. Sorry to hear you are suffering some side affects after radiotherapy. Hope the scan comes with positive news

Good luck for your scan. We wish you the best

Please have my partner in your thoughts - his MRI is on the 20th