Good afternoon,
My mam oxygen levels are now fluxuating, they are reducing her oxygen that's she on! As the tumour is progressing. She's so emotional, crying all the time, she's got no quality of life, they get her up in a wheelchair, 5 minutes she wants to be back in bed. She's very close to a couple of carers who are now off till next. My mams friend called when I was there, literally wasn't interested in her didn't even look at her, she dropped some pop off and left. I felt bad but I can't do anything. My mams on the highest dose of everything. When do they start reducing steroids or will she be on them until the end! It's a hard one, she was saying to me I can't fight this anymore! Is it now let nature takes it course. That's the impression I'm getting!
Thank you for my rant
Xxxxx
Oh, Magpie, no need to apologise for ranting. We're all here to listen and support you as best we can.
This journey is beyond tough. It's cruel and its heartbreaking to watch.
I'm not medically trained but I would suggest that you have a frank conversation with the palliative nurse and Dr about what they think the next few days/weeks are going to bring. Ask them to be 100% open and honest with you. Ask them what they would do if your mam was their mother.
I had that conversation or variants of it several times in the last couple of weeks of G's journey. He had been on a very high dose of steroids that triggered steroid induced diabetes so the dose was wound back. He levelled out on 4mg of dex a day but about 10 days before he died we could see he was failing and I had that frank conversation with the hospice nurse and with the doctor's approval they agreed to stop the steroids. Did that medication tweak hasten the speed of the journey?....we'll never know.
Trust your gut instincts here. Afterall you know your mam best and know what she would want to happen.
Sending you strength, love and light and hugs
Wee Me xx
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