Hi, my mam has getting worse today she's starting to slur her words. I give her a little pamper session. Told her not to worry about me, I know she is worried she said I know you will be fine,
Then she says where's Rosie her dog that passed in Oct last year. She says she's here, then she was like can you here those voices.
The hallucinating is staying. Is the end near, I promised her id get her in a chair and take her outside. I hope that happens physio aren't coming until next week. She keeps falling out of bed.
This is getting very real and I'm terrified
Thanks
HI Magpie26
sorry to hear that you think things are changing.
I don't recall G hallucinating as such in the weeks before he passed but he was very confused and often just spoke gibberish. It's so hard to know what's going on in their wee heads.
I hope you get some guidance from the palliative nurse if you get to speak to them.
I had referred to this link when I was anxious about G's decline. It's a little generic but its a guide - End State Symptoms of Brain Tumor Patients - Glioblastoma Support Network. There's also some end of life expectations/guidance on the main MacMillan site End of life | Macmillan Cancer Support Sorry none of it is easy reading.
This journey will take as long as its takes. Twice we were told to have our last conversations as the Dr expected him to only have a few days and twice he defied the odds. In the end, things went downhill very quickly. I likened the last few weeks to walking slowly down multiple flights of stairs. There would be decline then a pause at a certain level then there would be further decline and a pause and on it went.
Remember to try to take care of yourself here. This is a gruelling journey and it takes its toll.
We're all here for you. We get it. You're not alone .
sending you love and light and strength and hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Hi, thanks for that, I'm going to ring the palliative care nurse in the morning, I know they have upped her steroids. Hopefully I'll get more clarity tomorrow.
Yeah I'm ok looking after myself, I can't stop eating usually I'm the other way round 
Yeah it's a bloody rollercoaster of everything mixed.
She forgetting a lot from the previous day.
We had a good chat today tho. That makes me feel good
Xxxx
