Hello All, I hope you are all doing well (as well as you can be given your individual circumstances). I wanted to say hi and maybe get a little advice please on how to cope.
My mum was experiencing a few of what we thought were fainting episodes at the end of last year, but now know to be seizures and then began to really struggle getting her words out. We assumed she was just concussed because the second time she had one she fell and really badly hit her head. Anyway fast forward to Monday this week we took her to a&e as the speech situation got much worse and she was so confused. She was admitted to hospital and yesterday we were given the news that she had a 3cm brain tumour which we’ve been told looks extremely likely to be cancerous and aggressive. We are waiting for the neurologist etc to have their weekly meeting where they discuss the cases and what they are going to do to before we know anymore but it’s likely to be a week or so before we know.
im just absolutely devastated beyond belief. I don’t know how to process this information. I stupidly had a few strong drinks when I got home last night and then had a terrible night sleep and feel so anxious this morning so I won’t be doing that again. But what do I do to process this? I can’t eat, I can’t sleep, I can’t even drink water I feel sick to my stomach, might be TMI but can’t even get off the toilet.
thanks for reading x
HI Mummamel
a warm welcome to the online community. So sorry to hear about your mum. Life's too cruel for words sometimes.
I can empathise with what you are going through as I supported my late husband G through the 3 years of his stage 4 brain tumour journey. Nothing prepares you for the initial shock and disbelief of any diagnosis.
Not knowing what journey lies ahead is a 1000 times harder than knowing what your are dealing with. For now can I suggest that you write down all your questions, fears/concerns and take those notes to the appointment. They'll act like a script and help keep you on track and from forgetting to ask about something that's important to you and your mum. These early appointments can feel quite overwhelming but remember there is no such thing as a stupid question. Please promise me you'll steer clear of Dr Google. He's a scary dude. Focus on the facts as you've been given them not the what ifs. Easier said than done I know
There is some generic info on the main website. I've pulled together some links for you and your mum.
Supporting someone with cancer | Macmillan Cancer Support
Cancer diagnosis | Macmillan Cancer Support
Understanding primary brain tumours | Macmillan Cancer Support
This is a safe and supportive space so please reach out here anytime. There's always someone about to listen who gets it, someone to hold your hand and to offer a virtual hug when its needed. You're not alone. We've got you.
It’s always good to talk so please remember that you can also call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
For now though I'm sending you both a huge virtual hug and lots of positive energy. You are coping so much better than you give yourself credit for here but you'll just need to trust me on that.
Love n hugs
Wee Me xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
