Steroids and moon face

I really feel for your sister. I, too, had puffy face and body while I was on dexamethasone. I was embarrassed about how I looked, and only wanted my immediate family to see me. 

When I finished Radiotherapy and my first chemotherapy, everyone wanted to see me 'ring the bell'. They took pictures and videos of me doing this. I hated seeing those pictures because they didn't look like me. My hair was falling out from the radiation, too! I also had Hydrocephalus in my forehead which, I had to have a shunt implanted to remove.

I got angry when people would tell me that I looked 'fine' and that I should remember it was caused by what I've been through. Of course I knew that! I just didn't want to look like the marshmallow man!

Finally, my oncologist allowed me to go off the dexamethasone on the promise that I'd go back on it at his request. I never had to take them again, and the puffy face and body went back to my new normal.