I’m new here, I was diagnosed with stage 4 cancer that has spread to my liver and possibly my lungs

Hi there, I am Stage 4 bowel, liver and lung and on FolFOX 6 cycles, sorry to hear what medics told you, I don't know what to think, I have last cycle on 17th Fed and 20th Ct Scan. Then wait for consltant. I have found you just to see what curve ball they throw next. All I can do is concentrate on is kicking Fred's and the rest of the Flinstones arises. I named bowel tumour Fred and then found ot about the others later lol.. I found out I had bowel cancer due to routine blood test for something else which showed I was anaemic!!! Chend with camera endoscopy showed nothing said to have colonocopy so had after going away. So Got married again end of Sept had honeymoon in Spain. Came home booked colonoscopy, could finish as found tumour then started on this rollacoater ride. Sending hugestgentle hugs and love  xxxxxx8

Hello Emma234 ,

So sorry to hear about your diagnosis. I’m pleased you found this support group to reach out to. There’s lots of positive stories here that I’m sure will help you. I certainly pulled on my comic book pants shortly after the support/experience I found here & facts I found out with McMillan.

There’s people on this group that have been living with for many years. There’s people that have very hopeful stories.
Keep hold of that positive fighting spirit! 

Plenty of people will be along to reach back. Love & hugs B

Welcome Emma234 

Firstly what a drop in your tumour markers . Something has definitely been going in the right direction . The waiting on scan results is just rubbish . My mum is a bit of a expert now as she has had over forty but we will never fully reconcile with the process of waiting .

To be very honest my mum is heading round to year 14 as a stage 4 patient . She had a significant spread to her liver first then it popped up to her lungs and has just had another reoccurrence in her lung . However she has also had the most wonderful life in between treatments which were tough on her .

As I said in another post you are a statistic of one . Only your response to treatment predicts your outcome and there is lots of hope in that .

Any time my mum has been off treatment she has some regrowth as that is what cancer does however that does not stop other options like surgery as they normally like six weeks between chemo and other interventions anyway . Surgeons know their margins and the room they have to play with . My mum has also had a six month gap between chemos and it had some growth but responded again the second time .

It takes time to get a feel for how they work and also how your own body works with treatments . Very early days . But they will take good care of you .

Take care ,

Court 

 Jane2309  I sincerely hope the flintstones pack up for good and get evicted !

How are you feeling post chemo ?

Take care ,

Court 

I’ve been really lucky with chemo no real nasty side effects. The Panitumumab gave me the worst side effects with really dry skin to my face and neck and sore on my fingers but that’s it.

Hello Emma234, so pleased to hear that your cancer markers have gone so far down, not just glad for you but I can  take heart that it is possible! I really love your " I am not accepting this timeframe" -  good for you... my unlimited best wishes to you.