Hello everyone, I’m so glad I found this group as my 49 year old husband was diagnosed with colon cancer two weeks ago and will undergo a left hemicolectomy this Tuesday. We have one 11 year old son who doesn’t know any of the details and I haven’t shared this information with most of my family or close friends.
The doctors believe it’s stage two or three - my guess is it’s more on the advanced side of 3 for a variety of reasons. In short, he has an obstruction and severe pains and low hemoglobin landed us in the ER, followed by a CT scan, colonoscopy, etc. As much as I’ve tried to stay off google, it’s been hard to avoid and I’ve never been so scared in my entire life.
Strangely, the idea of revealing this to people I know makes this too real. I considered myself to be a pretty open person (friends from work and my brothers know), but I can’t bring myself to discuss this with most of my friends or parents. Is that wrong? I’m not sure what to tell me son. How has everyone handled answering the massive amount of questions? (Just based on the small group we have told, I can’t keep up and each person I tell makes me more petrified by their response).
prayers and love to everyone…
Hi @Stella Dena and welcome to the board. My first advice is always to stay away from google as it is out of date, scary and misleading. Bowel cancer is notoriously slow growing but very treatable especially if caught early. The initial staging of 2/3 is based on the scans and shows that the tumour has grown into the bowel wall but not out of it and into other organs (which is good).
I’ve attached a couple of links below about talking to children. You may want to avoid the c word and just say that daddy has a lump in his tummy that the doctors are going to take away?
https://www.bupa.co.uk/health/health-insurance/bupa-cancer-promise/i-know-someone-with-cancer
Do I think it’s wrong that you haven’t told your parents? If I’m totally honest yes especially when you’ve told work friends and your brothers - it also puts your brothers in the position of having to lie to your parents if they suspect something is wrong and and ask them if they know anything? You will find that people will have lots of advice and will know some body who knows somebody etc.but cancer is very personal and everyone has different experiences. If you just want to say ‘he’s having an operation to remove a tumour and we’re hoping he’ll make a full recovery’ and just leave it at that then you can. I nominated my mum as point of contact and encouraged family members to ring her for updates rather than my husband having to take countless phone calls. I set up a whatsapp group for my work buddies and just posted regular updates on that.
A diagnosis comes as a hell of a shock and a certain amount of disbelief but, as you can see from the number of posts on this board, it is unfortunately all too common. You will have a tough few months ahead but it is doable. Here’s another link about the op (sorry!)
https://bowelcancerorguk.s3.amazonaws.com/Publications/YourOperation_BowelCancerUK.pdf
So now for the positives. As I said before, bowel cancer is very treatable. I was stage 3 when I was diagnosed in 2016 and I’m still cancer free. I ‘buddied up’ with 2 ladies on the bowel cancer uk board who were the same stage and we went through it together - they are both still cancer free too. You are going to experience a roller coaster of emotions but everyone on here will be happy to help and support you through this. You can ask anything you like - there is nothing too daft or embarrassing.
Take care
Karen x
Every cancer is different. Im not sure you can stage a cancer based on symptoms alone. Ive seen cases at stage 4 with no known symptoms. It was picked up on routine screening. Other people have been treated with more advanced.symptoms. I've told few people about me. I feel it would cause more.drama than i need.
How your husband handling the situation?
Hope it works out for you both .
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