Hoping for treatment plan today 3rd time lucky

Hi Bud.  Can't help with immunotherapy question, but keeping everything crossed you get some answers and a treatment plan in place today.

Best Wishes,

Net77

Hope you have had your appointment by now Bud 18 and your feeling a bit more knowledgeable about the way forward !

Thinking of you ! Always a draining day getting all the info together . Time for a rest !

Court 

Well back from appointment it's confirmed bowel met on bone left elbow and the nodules bowel, pet scan showed 2 lymp nodes 1 near armpit another chest area.

Plan is tablet chemo daily with infusion 3 weekly for 3 months then scan to see if it's been effective then 3 months more of the same, until that done they won't consider surgeries as they need to treat all areas.

Feel scared in case chemo don't work then there no other options.

Any good outcomes out there much appreciated

Hi Bud 18

That was the plan they gave my mum ! Straight to chemo ! It was looking back the right plan as it worked on the visible and the micro disease . After the chemo then surgery they sent her lymph nodes to pathology and not one single cancer cell was found alive !

How long do you think your elbow has been affected for ? 

I know surgery sounds like a good solution right away and but I credit the chemo first approach for my mum in her long term survival!

The systemic aspect of chemo targets all cells !

You will be exhausted today !

Court 

Hi Court, my elbow been on going for about 7 months,

In my head yes surgery I was just get it out, now I home I can see the bigger picture, let's target all cells so the chemo is for bowel cancer.

Not worried about feeling ill as I think I just gotta focus on the job its doing

Really appreciate your support Court xxxxx

My mum always spoke about finding her focus . She had to digest each new piece of information, let it sink in then she rallied for the next chapter in treatment. Slowly , sometimes very slowly she kept moving forward and made progress .

Think you are on the same chemo as she had . You are significantly younger and probably much better at staying hydrated ! 
That was half of my mum’s problem on chemo !

It can be very effective ! It was actually amazing seeing the before and after scans !

We are here each step of the way and a third of people get only very mild symptoms !

Take care and I hope you get over for a good sleep tonight !

Court 

Hi  Bud,rooting for you that it is 3rd time lucky. Glad you have your plan, everything crossed. Take care Nelly 55 xx sending hugs

Hi Nellie, thankyou how are you?? 

Hi Court, I slept OK, feeling bit more positive this morning, taking one step at a time, the chemo is infusion of xelox then tablets are capecitabine.

Hope you are OK

1. Hi Bud, I have terrible anxiety. I’m seeing a surgeon this coming Thursday, but not sure if he is going to steer me to oncologist first for chemo. It has come back 2nd time inconclusive after the MDT meeting. So they don’t know for definite it’s cancer but was told twice it was but like I said after MDT  inconclusive and they don’t know if anything anywhere else. My next set of scans are on October 20 so they didn’t bring them forward so far. I think you said you didn’t have chemo? I ha d the tablets for 5 weeks with the radiotheraphy. But I was told this time if I have it will be I v just wish us so much for us going forward with this horrible disease. Love and kindness to us all  best wishes Nelly55. Xx