Newbie - Small Bowel Cancer - Adenocarcinoma

Hi LiverpoolJulie

Welcome to the forum . I am sorry to hear about your diagnosis and we do have other people currently on the forum too with small bowel cancer . I will need a wee bit time to try and remember who ! 
Hopefully they will see this as you have labelled it well and pop on .

Stwhitm speaks highly of services in your area and also keeps us going in so many ways so I will tag him In to say “Hi “ too .

In terms of the clinical trial the components of your treatment are familiar to the bowel forum so we could certainly help out with information regarding them .

take care ,

Court 

Hi,

Many thanks. :-)

Julie

HiLiverpoolJulie

I knew I had just read of someone recently 

 posted very recently . I have tagged them in and hopefully they will be around . You can also message them directly through the Private message facility . You just click on their name and press the “ plus” sign and it should send them a friends request then you can message each other .

Take care ,

Court 

Hi,

Thanks so much for letting me know.

Julie :-) 

Hello Julie

 I don’t often look at this site but wanted to reply to your post when saw it. It is harder to find any threads on small bowel cancer now it is the same group as other less rare cancers. It used to have its own group on Macmillan site.

 I was diagnosed with stage 3 small bowel cancer and had surgery in 2015. I wasn’t offered chemotherapy as there was no evidence that it was helpful. I think it is so rare there isn’t any evidence either way. I am pleased to hear there is a clinical trial taking place and like you if I had been offered follow up treatment I would have taken it. As it is I have been clear and healthy for almost 5 years now.

All the very best with your treatment. Let me know how it goes.

Lilliane