New to this, scared of this

FormerMember
FormerMember
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Hi Guys,

I am new here, but as with all of you, it's the one place you never wanted to be a new member! Just a little of my story, had an emergency operation to remove a ruptured bowel tumour, and was placed onto a stoma! Realeased from hospital yesterday to recover at home, but had the dreaded phonecall today to say it was a cancerous tumour, and it has deposited secondaries at my liver and surrounding stomach lining.

I feel lost, I feel scared, but I am strong I know that. I don't need replies or sympathy, because we are all facing this together, just nice to know I am writing to people who genuinely understand!

Thank you

  • FormerMember
    FormerMember

    Hi sme I also had a bowel tumour. I had my resection last week. When I was first told I was angry then cried I was scared there’s nothing worse than the dreaded c word . I’m just getting back to normal slowly but I know where you’re coming from x 

  • Hi

    Big welcome from me too! Hope your recovery at home goes well . Always nice to get back home !

    If you click on my user name you can read my mum’s story . She is  in her 11 th year as a stage 4 patient . 
    Feel free to ask any questions or jump on any thread . Lots of good advice and support is always available . 
    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • Hi Sme1985 it is frightening having a cancer diagnosis  I had chemo radiation but there is still some cancer left so I think it’s surgery. I am usually strong . But this has knocked me completely. Take care Nelly x

  • Hi Nelly1955,

    I am new to this and like you feeling completely knocked sideways by what is happening to me. I’m waiting for results but all symptoms indicate bowel cancer. I’m so scared but trying to be strong. I have three beautiful children and can’t bear to think I might leave them. I am trying not to be wallowing in self pity and to keep positive- this is great to have as a place to share experiences- have been wandering around in a daze now for days.  I hope you’re ok and you don’t mind me sharing my worries with you. Stay strong. X

  • Hi and a warm welcome to the board from me. The time waiting for scan results, meetings etc. is very stressful but once you have a treatment plan in place then things will feel a bit better. Bowel cancer is very treatable and all of us here on the board will be happy to support you through it. Stay away from google - it’s out of date, inaccurate and downright scary in places. Stay on here and the Bowel Cancer UK Board - you can ask anything you want - there is nothing too daft or embarrassing!

    Please let us know how you get on

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • Thank you so much for your reply. I am hanging  on to your words and it’s good to know someone is out there who understands. Finding it hard to be cheery this New Year’s Day but realise there are an awful lot of people in similar and more difficult positions. Thank you again. X

  • FormerMember
    FormerMember

    Hi

    I too have just joined the forum today. I was rushed into hospital in February last year with a ruptured bowel which proved to be stage 4 bowel cancer which had spread to my liver and stomach lining for which I am receiving palliative chemotherapy. 

    I completed my 16th round of chemo yesterday. Its a frightening time but stay positive always. I have a 3 year old as my motivation everyday. It has taken me until now to find the courage to join this forum...im glad you have joined early. Good luck on your journey and just see any setbacks as bumps in the road. Take care. 

  • Well Hello 

    Just want to welcome you to the forum . Glad you joined in . If it’s any help it took me months too and after my first post I could barely look at it . That was back in 2009 ! Here I am all these years later and more importantly so is my mum .

    Hope the chemo worked well for you . 
    Take care ,

    Court 

    Helpline Number 0808 808 0000

  • FormerMember
    FormerMember

    You're right.  This is the club nobody wants to join. I think it was Groucho Marx who said he would never join a club which would have him as a member. But the company here is good. You'll find wisdom, support and a great clubroom full of people. Cancer makes you feel very alone. You're not. Your new evil companion just wants you to feel that way. It might not be defeated but it can be contained. The battle is physical but also mental. Many people joined this club assuming they wouldn't be renewing their membership in a year's time. Many are still here. You are strong. We all are. And we're all weak sometimes. You'll get things from your new club membership but I reckon you'll also be able to give to others. Welcome. 

  • Hi DSMJ, I got good results from my scans another one next week, I think the waiting is the worse. I think sharing your worries on this site is a good thing because people understand. Because I got results everyone thinks I should be doing cartwheels and should stop being anxious. I do admire the cancer patients who cope, I’m not one of them can’t help our feelings, take care and sending love and hugs. There are so many lovely people on this site who are so knowledgeable, I still don’t have a clue. I had chemo radiation for 5 weeks. I just know that everything takes time. Take care and let’s hope for good news in this new year.. take care xxx