Capecitabine

FormerMember
FormerMember
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E48 here. I've now gone for a second opinion at the Royal Free, London, and the suggestion is that I try Capecitabine (Xeloda) to see how I get on. Also cortosteroids for the liver problems. Comments, advice, and specially personal experience very, very welcom. Thanks.

  • FormerMember
    FormerMember

    Hi and welcome, I see that your profile is empty. Could you give us a bit of background as to where your cancer is/was and what you have had done and not had done, otherwise it is very difficult to comment

    thanks

    Nicky

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Nicky, Colon cancer, diagnosed in September, now spread to the liver. No surgery, and was advised by the first oncologist to avoid chemo and radiotherapy because of side effects + my age. Went for second opinion, and was prescribed as above. Took my first steroid just now. I have abdominal bloating which causes breathlessness and extreme tiredness. Chemo to come if I decide to go ahead. Was very healthy before this horror struck me, and am still traumatised by it all.

  • FormerMember
    FormerMember

    Hi ,I was on Capecitabine for 5 weeks along  side radiotherapy and had no side effects with them.I have not long ago received the results of my treatment and my tumour has reduced to half the size x

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Cheerful Mum ,. Doing the 5 weeks of radiotherapy and chemotherapy tabs also 1st week..any side effects from radiotherapy..have read a few things that do not  seem pleasent.. worried..good news about tumour reduced in size , I'm guessing surgery is next step x

  • Hi E48...I would go with what your second Oncologist advised, & take the Capecitabine Tabs. I had 6mths of them this year, & they shrunk the 2 small Mets.in my Lung. which enabled me to have 'Lung Ablation' last month. You don't mention your age. I am 71, & had no side effects until my last cycle...which were uncomfortable, though reasonably minor at the time. However, my Oncologist stopped them then. IMO, it's worth the trying if it means a possible shrinkage.

    Best wishes

  • FormerMember
    FormerMember in reply to FormerMember

    Hi,no not really, I got a sore atvthe top of my bottom ,was very tired everyday.im in for surgery next week xx

  • FormerMember
    FormerMember in reply to FormerMember

    Ok that's good news , guessing it depends on each individual...yes I'm guessing I will get tired as weeks go on but hoping to carry on and exercise if I can..wishing you well with your surgery x

  • FormerMember
    FormerMember in reply to FormerMember

    I kept myself busy when I had the energy.thank you for your well wishes hope all goes well for you.postive attitude helped me loads xxx

  • FormerMember
    FormerMember in reply to FormerMember

    You are right positive attitude helps loads..let me know how surgery goes when your feeling up to it xx

  • FormerMember
    FormerMember in reply to FormerMember

    Will do xx