HI All,
First time posting on here, recently been diagnosed with colorectal cancer, been for multiple colonoscopies, MRI and CT scans, and they are happy the cancer has not spread, the annoying this is the cancer is right at the bottom of the rectum, so in a difficult place. The oncologist gave me 2 options, first was 5 days of radiotherapy then surgery which would results in a permeant stoma. Second option is 5 days of radiotherapy followed by 3 - 4 months of chemo, hoping to remove cancer completely, if successful it would be colonoscopy every 3 months for 3 years, then yearly, if unsuccessful it would be the surgery same as option. They said the chances of success were around 20%, i opted for option 2 as i would really like to avoid having a stoma, i am aware that the chances are not in my favour but thought i would take the risk.
Any one else on here had a similar story and have anything advise or if treatment was successful etc.
All the best Gordy
Hi Gordy8426e9b8 and a warm welcome to the board. Have you considered Papillon treatment? There has been a few success stories on here - see link below and if you click on Jogey’s name then his profile page will show his treatment to date and also some top tips at the bottom!
Here’s a link to the Clatterbridge Centre where they do the Papillon treatment
https://www.clatterbridgecc.nhs.uk/patients-and-visitors/our-services/papillon-treatment
Hope this helps. I’ve seen posts where people have had a complete response then no further recurrence and I’ve seen posts where they’ve had a recurrence within 6 months but there’s no harm in giving it a go and hopefully becoming 1 of the 20% club!
Take care
Karen x
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