Hi to all out there! I feel like I have lived on this bloody computer since my Dad got diagnosed 2mths ago! We live in New Zealand, and are trying to get a grip of what is going on and would love to here of positive stories from anyone else going through the same thing!
My Dad has always been a fit and healthy man. He was concerned with a lump he felt in his tummy... after testing we found out this was liver mets from advanced colon cancer! He has been tender in his tummy, but not in pain at all. He started chemo 2 cycles ago, with xeloda tabs and oxaliplatin. I am worried that living in little old New Zealand that my DAD may not be getting the best treatment, that there maybe better things out there! He is a fit man and has a better appetite than he has ever had, so we are hoping all of these factors will make him respond well to the treatment. I would love to hear from you all x
Ann, I am really pleased Nev has two options. Great. No wonder he is feeling off this has really been drawn out. I am surprised you are both still standing.
Jash, To be honest that is not the kind of week I was hoping for you. I was thinking cup of tea , peace and quiet. You were doing more hours than some nhs employees!! Hope the stent goes ahead and helps your husband out.
Love Court
Helpline Number 0808 808 0000
Hi all... Jacqui - what a week for you. It is good to hear that there is no new growth, this is always good to hear. I hope the stent can go ahead and help Al's liver out, does that mean if it does then chemo may be offered? You are doing wonderfully Jacqui, the old hospital trips are just plain awful - I still drive past the hospital and it feels odd not having to be there. How are your boys doing? Ann - what a slog you are having my friend, no wonder you are feeling 'woe is me!' Rightfully so I say. I hope SIRT is offered for Nev, or if not right now that they get going with chemo so it can be offered down the track. You too are doing fantastic, this whole cancer business is so draining, always something to think about, what step to take! Court - I bet you got a fright camping! Not the ideal time for things to change, but pleased they have sorted themself out - your mum is a star! Rhiannon, how are things in your camp? I hope doing OK.
My Mum is coming down today. We haven't seen her since our trip, so our kiddies have loads of photo's to show her, and stories to tell, and some goodies for her! She is doing OK. It is getting close to the opening of fishing here, which is very very hard for Mum, Fishing was Mum and Dad's life - now so different. Mum went through some of Dad's vege seeds and found a note from him saying what needed lime and what to do... brought tears to my eyes (and Mum's), that's my Dad - so organised and just making sure we do it perfectly as he would have done! The weather here is starting to fine up, and of course all go here with the 'Rugby World Cup' kicking off tomorrow! Go the All BLacks! Bye for now all - Jules
Hello EVeryone,
Sorry its been a while since ive been online, lifes been running away with me lately and have hardly stopped.
Thank you to everyone for the replies and the words of support its been a huge help to my outlook and mood.
Not much to report really except things have settled for the time being mum finishes rt in a few weeks then a scan will follow a few weeks after and then the results, im going to her next app with the consultant but its not for a while yet and i have decided for the time being just to relax about things and see what happens. I guess will know more after the app and then will have the oppertunity to ask my own questions and fill some of the gaps.
Jules - was pleased to read you had a lovely trip, and i hope your having a lovely time with your mum.
Jacqui - Im sorry to hear your having a time of things at the moment i really hope things start to ease for you and the treatment goes well with positive results. Sending lots of love to you both.
Court - Glad to hear your mum is not home with positive scan results and hope the pain shes experiencing subsides soon.
Ann - sorry to hear youve been feeling woeful, we all have down days and sometimes i think their needed because it makes the good days we experience even better. for what its worth your doing amazingly well. Keep on keeping on, I have everything crossed for you for a good outcome with Nev's treatment options.
All you girls are absolutely incredible and such a massive inspiration.
Much love to all
xxxxx
Sorry court was meant to say glad to hear your mum is home with positive scan results.
xxxx
Well the s**t has really hit the fan. Al and I went to see dr yesterday re if it is possible to have the stent fitted and he was in so much pain with his back they decided to admit him into the hospital to try to get pain management sorted. Saw the palative care doc who told us very nicely that there is nothing else they can do now and that we could only have a couple of days!!!!! wham bam thank you mam.
They tried to move him to the local hospice today but sadly it is full!!!! I then decided that I wanted him home and at 4 this afternoon I got him here. I now have the district nurse coming in daily to sort out the morphine drive and the macmillan start coming in on Monday.
Been on such an emotional roller coaster I really don/t know if I am coming or going. I will try to keep you up to date.
Take care everyone. Love to you all
Jacqui
Oh Jacqui
I am really so sorry to read your post. Having been there myself there is nothing I can say except just be there for Al & the boys and get through it the best you can.
Have you got lots of support and help because you are going to need it.
Keep as strong as you can, my thoughts are with you.
Here if you need to talk.
Love jackie xx
Oh Jacqui I am so very , very sad to read this.
I shall be holding you, Al and your boys in my heart and thoughts. You must be in a state of shock and yet again you are there supporting his needs.
I am glad you got him home and we are here to support you in anyway we can
.Much love,
Court
Helpline Number 0808 808 0000
Oh My Dear Jacqui...Arms around you tight my love. You will be in utter shock. I hope you have friends and family close to you, and that you somehow are finding strength. I am so pleased that you had your 5 week holiday. Words at this time don't seem enough. You have friends on this site that are here for you at anytime, and hold you, Al and the boys deep in their thoughts and prayers xxx LOVE AND HUGS xxx
Oh Jacqui my love,
Your news knocked me for six and brought tears springing to my eyes, so what you are feeling I cannot imagine. Take care of Al the boys and you. As the other girls have said we wish you love and strength and we will be here for you whenever you need us.
Love
Ann xxx
Jacqui,
I was truly saddened to here your news, Im so sorry. All my love and thoughts are going out to you. I know theres no words that can ease you but theres lots and love and support for you here.
lots and lots of love and hugs
Rhi
xxxxxxxxxxxxxxxxxxxxxxxxxxxx
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