My Dad 66yr old with bowel cancer stage 4 with liver mets

Jacqui I was so sad to hear you have had such shocking news, no matter what we know we are never prepared to hear this. I am thinking of you and the boys at such a very difficult time. I hope Al  remains as comfortable as possible.

Love Judy xx

Hi all... Just wanted to drop a line to Jacqui, to say that I am thinking of you, Al and the boys.  I hope you are getting all the support you need at home to make Al comfortable and to not put too much of a strain on you and the boys.  Thinking of you, sending you love and strength xxx 

Hi, Thank you so much for your lovely messages and kind support.  Today is our 24th Wedding Anniversary.  Hospital bed got delivered just after the flowers....

Al is quite yellow now and all over.  He is very itchy and from an outsider it seems as though he has had 10 pints of beer.  He is dosed up with morphine but still has some pain.  A new one seems to appear everyday.  So far the district and community nurses have been fantastic and tomorrow the local hospice are visiting.  They are the only visitiors we have tomorrow as since friday we have had a steady flow and it is too much for both Alex and me.  Very emotional and very tiring.  Why do people need to see someone at their lowest ebb, why not say what they had to say in the last 6 months.  Think the doc got it wrong with "days" but with the amount of suffering he is going through I have to say I hope it is not too long.

Boys are being amazing, is so hard on them too.

Anyway take care big (((((hugs))))) to everyone.

Jacqui

Hi Jacqui, you are doing beautifully, and sounds like you have some good support. I hope they can keep on top of Al's pain.  Yes I agree, with the visitor thing --- must be human nature I guess, to leave things to the last minute.  But yes is very very emotional, and tiring, and I know hard on you to see people coming in and out when Al, really doesn't need the strain. Dad had a constant flow of visitors, and Mum found it the same as you.  Don't be scared to turn people away if you feel the need, I'm sure they will understand.  Great to hear your boys are being amazing, a real attribute to you and Al... 24 wonderful years, of wonderful memories and 2 great boys by the sound of it.  Hang in there Jacqui xxx        

Jacqui,

Still holding you all in my thoughts and sending my love.

Court

Hi all, Jacqui, Just to let you know I am thinking of you, Al and the boys. Let us know how things are when you feel you can. Xxx Jules, Court, Rhiannon, all ok? love Ann xxx

Hello all...

Ann, how are you and Nev going?  Any progression with treatment, or is the system still 'mucking' you around?

Court, how is that lovely Mum of your's going? 

Rhiannon, how is things going with your Mum at the moment?  I hope is she is doing OK.

Jacqui, XOX thinking of you, Al and your boys.

Things here are OK, still seem to be quite teary some days, just seems to sneak up on me and bite me in the arse!  Still feels like a bad dream-- no such luck.  Mum is doing very well, Dad would be so proud of her - I know her heart is breaking, but she is getting through.

Love to all popping in on this site.

Well I eventually found you all. Just love my avatar !! No idea how to change it so we will be travelling together for a bit. Also lost my photos and you all know how long that took to load.

Jules,

Good to hear from you too. I hope your doing ok too. I feel for you so much and totally understand that you miss your dad's presence. Your mum is being so brave despite her pain. I know you treasure all the love your dad gave you.

Ann, I am going to PM you as I thought I saw something on my travels.

Jaqui, still sending my love and hope Al is comfortable and your holding up and getting the love and support too.

How is everyone else doing. It is always good to hear from you and anyone else who wants to join in.

I was driving mum to a hospital appointment today, passed a field with green sheep. I was feeling it was a bit of overkill when I noticed a " we support Macmillan" banner. How cool is that. A whole field of green sheep.

The hospital appointment actually went really well as I thought things were not so good. Turns out all is well clinically but mum is just worn out at the moment. I noticed her brighten on hearing this.

Take care all,

Love Court

Red leader to blue leader, red leader to blue leader.......Hey Court, so glad the GPS kicked in, saves me (who only has a couple of wine glasses at my disposal...hic!) searching.  So glad Mum is ok, onward and upward.  I guess what you noticed as you were cruisin'  SE England was my updated status?

We saw the Hospice Dr. today.  The problem with Nev's stoma is caused by the liver failing, he also has permanent hiccups - caused by the liver failing, and jaundice - caused by, you guessed it, the liver failing.  He is very doubtful that any more chemo or any other treatment will be offered.  I knew it was coming, still a bit shell shocked though.  I was very weepy earlier but the couple of wine glasses (squared) have sorted that.  I am so pi**ed off with the hospitals "treating" Nev that I am going to ask for a referral to another one and start from scratch, I'm certainly not just sitting and watching his decline and doing nothing.

On that note I will depart and hope Jules is ok and can find us and that Jacqui and Al are being looked after.

My love to you all

Ann xxx

Ann, I have also sent you a PM hope you get it. I would be writting to the Chief Ex too. You are a reasonable person, this is unreasonable. He needs and deserves that chemo now. I am a private person but nothing moves the NHS quite like bad press does. Even if it is just a threat. It is fine having committees who sanction treatment but not the time delays they have caused. He is a good responder to chemo and I will be right at your back.

I worked in a provider setting and a politician also helps. I feel the injustice for you. Have you thought about asking the oncologist to commence an alternative chemo now till funding is approved.?

I believe if anyone can make them listen, its you.

You get the advocacy going first thing in the morning.

Over and out!!

Team Nev x