Bowel cancer CARERS, FAMILY & FRIENDS chat

Hi everyone. I am now in the same position as Jkee. Will find out tomorrow when see the consultant about this ct scan. He has mri on the 17. I think Les is a bit down and worried about tomorrow as I know I am. He is the same weight now as when I first met him. Even writing this is giving me palpitations.  Just dreading tomorrow.  Felt really down but like you Helen I have been sorting everything out and at last I am finished. The loft is full but son in law is going to help with that. 

helen you deserve a rest and done peace, just try and enjoy it and don’t feel guilty at all. 

vicky I also would be like you so don’t feel guilty about anything. 

I personally think you are all so brave in carrying on. Jkee keep us all updated on Simon and his scan. 

love and hugs to everyone suffering and try to be brave. Maggie xx

Hi Maggie I have you in my prayers at night for good results for Les scan sounds like you are keeping busy which is the best way I'm sure you will have knots in tummy tomorrow but wishes you well xx

Good luck tomorrow for the scan and will keep fingers crossed for you both

Helen x

Thank you all. I already have butterflies but keeping busy.  You never know what they are going to say but I will let you all know tomorrow.  Daughter just coloured my hair and put stuff on vinted after clearing out my stuff. I only have the other bedroom to do but can’t do that til the bookcase comes as there are 60 albums of stamps. Once done I will get a valuation on them as you never know. They are not mine but belonged to Les dad and he and his father collected them for years.  Les is also interested.  Guess what I can’t see the attraction at all but each to their own.  Big hugs to everyone xx

Thinking of you Maggie! Good luck to you and Lex for tomorrow. Hope some positivity comes out of it. Take Care.

Vicky xx

Well not sure what to make of the consultation. Apparently the liver has reduced but the bowel I think is causing problems. Les would not ask anything as he does not want to know so I did not ask. He has to have mri of his bowel now with liver but on separate days.  I just felt completely deflated and palpitations are going mad. He does seem worried but trying not to show it. Starts chemo again tomorrow which will be his 14 session. She also said he has to put weight on.  What an absolute nightmare. Felling very down hearted at the moment xx

Hi Maggie what does he mean bowel causing problems maybe write down what you what to ask it helps the men don;t want to know terrible  for you not really any answers for you I guess the mri will be clearer for them to see what do they think is wrong with the bowel. They are starting chemo again so in my head that would be still hopeful as far as the weight that is difficult unless he can live on donuts which I must admit we have done that but everyone turned up with cake chocolate and donuts but I am not sure sugar is good. Bless you so difficult when you are sat in there the questions always come when you get home love to you both xx

Hi Jkee. He did not want to ask so I left it as it was not my place.  Chemo may shrink it, she did seem a bit concerned though even though he has not used laxido for ages. She could not say much as the ct scan he had did not give dimensions etc so he left it, he just does not want to know and is happy not knowing as long as he can have chemo. I am just a mess as it is another wait. My fingers are crossed for you and Simon and sending you a huge hug xx

Oh Maggie! What an upheavel for you!! Sending you huge hugs. It's never easy having to second guess everything and Jkee is right the men never seem to want to ask anything. I hope they get solutions for you soon. Sitting today and my phone `pinged` with a message. A reminder that my sister has an outpatient appointment at the hospital this coming Monday (15ht Jan). I phoned her said had she got a letter and she said no then went to check and the letter she had which she said was for June was the actual letter for this Monday- January. Oh don't know I thought it was June she said so I will just need to keep an eye on this. Luckily because of how she is I have arranged for the hospital to send correspondence relating to her via my address instead of direct to her house. Good job I got that text message as they have my phone details too. Thinking of you all as always stay strong girls. Take Care. 

Vicky xx

Thanks Vicky. I am just a mess at the moment. Life seems to have completely stopped but hey ho I will do what I can. It is a good job you get a copy of the correspondence as you say as she would have missed the appointment.  It just seems never ending for you as well.  You are coping marvellous and I don’t know how you do it. 

huge hugs to all xx