Hi everyone
I'm Steph from the Community team
Here is a new thread for carers, family and friends. This is a space for you to chat, share experiences and support each other through issues related to your loved ones bowel cancer. The previous thread will shortly be locked as it was getting rather long which can make it difficult to navigate.
Please remember that we also have other dedicated spaces on the Community for carers, family and friends. These spaces exist so you can support each other away from members of the forum who might be dealing with their own cancer diagnosis:
Supporting someone with incurable cancer forum
You would be welcome to set up another new thread like this in one of the above forums. Please just let us know if you would like any help?
We hope you will continue to find lots of support from each other and the Community. We're here to help, so please do let us know if you have any questions or support needs by emailing us at community@macmillan.org.uk
Thank you torry. I just hope he gets some rest. He has been going about 25 times. I know he is better off in there but when I came away he said “I Courbet at home feeling like this”. He told me not to ring him either which is not like him at all. He knows how upset and worried I am. This is one rollercoaster we are all on. I may go and wat h tv in bed and ring the ward later.
take care all Maggie xx
Yeah they won’t mind you ringing anytime and it puts your mind at rest
Helen x
Maggie sorry to read this how awful for you both glad he decided to go to hospital they know in the end when they don't mind us ringing you know they are ill.They will hopefully help him I wonder if the chemo tablets are causing the blockage hope you get a little rest and get some news in morning sending you my love xx
Thank you all. My daughter keeps trying to ring but as you know night time is Skeleton staff and they are busy. They are really not sure what is causing this. I am off to lay down as everything is a whirl xx
Bless you yes night time at our hospitals is usually just nursing staff and 1 doctor covering all of the hospital hopefully things will be clearer tomorrow you just want to know he is resting long night I am sure big hugs xx
Hi Jkee. I put my back out this morning and can hardly move. I got on the car yo see Les but blinking heck putting my foot on the left peddle was so painful. Les was discharged just as I got there. They have said only to take 2 laxido and not the others as they are working against each other. His bloods were okay as well. I am sat on the bed with a hot water bottle. The pain is horrendous. I just hope it is okay later as I need to make something to eat for us both. I am utterly worn out. My frien came over as the lanterns were getting fixed and has been a gem. I feel a bit sickly with the pain but hey ho serves me right for doing too much. I just don’t know how you cope with a puppy and hubby. God bless you xx
Cricky what are we all like I remember cracking my ribs in summer that pain it is soo easy to do your back in I have done many times can you take ibrophen cold compress and heat I usually now buy the heat pads you can stick on your back or if really bad cocodomol . Glad les is home send hugs to you both x
I will ask my daughter to get some heat pads in the morning to stick on. I forgot all about the. Thank you Jkee. At the moment lescan I are both knackered and suffering. I hope you are not too bad and I remember your ribs. I can’t sit, lie or anything at the moment. Can’t even get my trousers off. Gosh what a rollercoaster xx
Sorry to hear you're all having issues. Gosh, it really is a roller coaster, one thing after another. Distraught, hope your back feels better today and your husband is ok. Sounds like it's been a stressful and worrying time for you, hang in there!
Hope everyone else is ok as well.
I've been so busy with work and my teach English as a foreign language course. One more month to go then that course is over. I can't cope with all this plus worrying about my dad. I don't know how you all cope!
I need to have a rant and get this off my chest. Yesterday my dad was due for his regular catheter change but the district nurse couldn't do it and told us to call and ambulance to go to A&E. My brother went cos I was working, they waited nearly 2 hours for an ambulance, our 2 local hospital was full and so they had to go to another one. They waited 8 hours before they saw a doctor, the doctor was very thorough and did lots of test, then finally another 4 hours later they could leave. They didn't get home till 4am! This morning, that hospital called and the A&E doctor want my dad to have a MRI scan to check his liver, so I'm going to take my dad there tomorrow for that appointment. It's good that doctor checked everything but my dad is so fed up and exhausted, changing his catheter has caused so much drama! My dad is reluctant to go for another hospital visit but I have to convince him to go. By the way, I'm in London so I guess the A&E waiting times are extra high cos there are more people. Now there's one more thing to worry about, I hope the cancer hasn't spread to his liver.
Argh, this is so stressful. Sometimes I really feel like I can't cope but I somehow seem to pull through but it does take a toll on our wellbeing. It's exhausting! So you're all doing so well. One step at a time. Take care everyone!
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