Hi everyone
I'm Steph from the Community team
Here is a new thread for carers, family and friends. This is a space for you to chat, share experiences and support each other through issues related to your loved ones bowel cancer. The previous thread will shortly be locked as it was getting rather long which can make it difficult to navigate.
Please remember that we also have other dedicated spaces on the Community for carers, family and friends. These spaces exist so you can support each other away from members of the forum who might be dealing with their own cancer diagnosis:
Supporting someone with incurable cancer forum
You would be welcome to set up another new thread like this in one of the above forums. Please just let us know if you would like any help?
We hope you will continue to find lots of support from each other and the Community. We're here to help, so please do let us know if you have any questions or support needs by emailing us at community@macmillan.org.uk
Hi Jkee. Well I have a trapped nerve in lower back. No need to tell you how painful that is. I could not get out of bed for a long time. Les went to see his consultant who said she is putting him forward to the MDT for his liver first but no promises as she is not on that team as they are in Newcastle. We have to wait 3 weeks to find out what is going on but she wants him strong enough and at least his fissure a little better. I am in shock with it. How are you coping xx
Hi Maggie off to hospital tomorrow to see urologist for Simon they found a stone in March when he was in hospital after 1 chemo and it effected his heart so I think this is a follow up but he has had awful pain in his kidney area so this is one appointment we are pleased to be going to.My anxiety is bad this week with my son and Simon IBS is playing up but it's to be expected I quess this weather make you depressed. Gosh you must be in a lot of pain our backs are so easy to damage just even turning funny hope you start to feel easier soon. Les hopefully should soon feel better we never know what each week brings do we love to you both xx
Thank you torry and Jkee. We never know from day to day. I have bought heat patches for tonight as I woke up and could not move. I am a bit sick of myself so I need a good talking to. Let us all know how you get on at the hospital tomorrow.
these dark nights and mornings do not help at all plus we are expecting that storm.
I wonder how Vicky is doing with her sister.
off to take some painkillers so take care and love to everyone xx
Hope the painkillers help a bit Maggie. I hope Vicky and her sister are doing ok too.
Met Kevin’s sister today for a catch up and she told me they have found something on her lung so she is having to go for lots of tests and endoscopy. Surely it can’t be all happening again, I certainly hope not but she is very concerned. Just something else to worry about.
Off to Manchester on Saturday to look at university for one of our granddaughters for next year so they want me to tag along. May as well go for a day out as Saturdays are strange now.
Take care ladies
Helen x
Hi Helen you think to yourself what a year then more upsetting news comes along i hope it is good news and not something else for you to worry about.Enjoy Manchester it is lovely your granddaughter has invited you along.Vicky if you are ready any of this hope everything is ok xx
Good Evening Ladies!
Well, Margaret is home!! Got her home today She is a bit tired but to be expected I suppose. You know what hospitals are like you never get a proper rest there with them constantly going in and out night and day doing different things to you taking blood pressure taking bloods etc. Her appetite is not great just now but they are not too concerned about that and said that will come back it's just I think her insides are still healing. They are happy with her progress and everything is seemingly healing well her scar and everything bloods ok, blood pressure ok. She was supposed to be home on Monday this week but she began vomiting so they decided they were keeping her there to get that sorted plus like the rest of your men she was having problems in the bowel area with not being able to go so they wouldn't let her home until they started to `work` regularly so it's gone from one extreme to the other now and she's going frequently but they're happy with everything so she's been able to come home. She didn't need the stoma I think they thought they might have had to go down that route but it's fine. Yes I must agree with you all it has been an absolute rollercoaster on this journey and just a horrible year I think for all of us and it's not over yet. I won't be saying `goodbye` to it on the 31st December I think I'll be kicking it out the door. I'm pleased that she is ok but it's all bitter sweet that she is still here and Jay is not. I'm trying not to think to far ahead just now and take each day as it comes but it's that way now that I'm waiting for the next upset to happen. I'm just so used to it now. So I pray that this time this is one cancer definitely didn't get and it will `F off` now and leave us alone think it's had it's quota from this family so I pray to God that it won't make it's presence felt here again anytime soon. So sorry to hear what you are all going through Maggie I really hope they can do their best with Les and your back is a lot better now. I just feel really drained having to go up and down to the hospital near enough every day and there are roadworks going on on the route to it and means traffic has been diverted as a road has been shut off. Traffic was a bit `hairy` at times and I was really in the thick of it at times, but I made it. So now I just hope any appointments Margaret has to go to now is on an outpatient basis. I can live with that. Take Care Everyone. Speak to you soon.
Vicky xx
Vicky so pleased your sister is home and doing quite well. That is one thing off your mind. I feel sad for Jkee having to go to the hospital today as the weather is atrocious. My back is no better and ironing is piling up as I can’t do if. Could do with a cleaner as well. Just take a breather and rest as you deserve it after all what you have been through. I just can’t seem to get my head around what the consultant said to Les probably as we are both in pain.
love and hugs to everyone. Jkee keep us all updated xx
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