Bowel cancer CARERS, FAMILY & FRIENDS chat

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Hi everyone

I'm Steph from the Community team Slight smile

Here is a new thread for carers, family and friends. This is a space for you to chat, share experiences and support each other through issues related to your loved ones bowel cancer.  The previous thread will shortly be locked as it was getting rather long which can make it difficult to navigate.

Please remember that we also have other dedicated spaces on the Community for carers, family and friends. These spaces exist so you can support each other away from members of the forum who might be dealing with their own cancer diagnosis: 

Family and friends forum

Carers only forum

Supporting someone with incurable cancer forum

You would be welcome to set up another new thread like this in one of the above forums. Please just let us know if you would like any help?

We hope you will continue to find lots of support from each other and the Community. We're here to help, so please do let us know if you have any questions or support needs by emailing us at community@macmillan.org.uk 

  • Hi Maggie!

    No I don't have piles. Oh dear is this something else to add to all your woes. Sending hugs.

    Vicky xx

  • Vicky hope you have the best day for Williams wedding, enjoy every moment as best you can on their happy day

    Helen x

  • Oh some one did on here. I have had external ones for years but TGE are painful.  Have a great day tomorrow xxx

  • Thank You Ladies!

    Will do my best! William texted me on Wednesday night asking if I had any photos of his dad, and two granny and grandads. They are setting up a `Rememberance  table` at the wedding and will include photos of people who were an influence in them growing up who are all sadly not here now. So they want to include photos of Jay my mum and dad and his mum and dad and Jays brother and his wife and Nicole's mum and her gran so that will be nice to see. Lovely that they thought of doing that. Hope you are all keeping ok and as usual sending hugs and strength. 

    Vicky xx

  • Vicky that is so lovely to think of others.  Just have a great day as jay would want you to as well.  Will be thinking of you tomorrow.  Take care xxx

  • Evening Vicky enjoy tomorrow will be thinking of you congratulations to your family xx

  • Jkee how are you holding up.  Les just seems so tired in a night.  I am just the same as usual so very anxious xx

  • Hi Maggie it's been really hard today Simon has had targeted therapy on Wednesday taking it out on his body as well as chemo he has been snappy and tired today hate it when he is like that the spots and rash on his body has flared up after Wednesday treatment hopefully tomorrow new day. We had a letter for MRI at Manchester Friday after Chemo Wednesday not sure now how we feel His Cea markers went up to 50 from 21 so don't want to stop Chemo which he would have to do to have operation and also it is only the small bowel his lungs have not been mentioned his body is soo tired he is depressed so lets just see nervous about what they will  find at the moment it's best not knowing what a mess love to you and Les xx

  • Oh Jkee & Maggie!

    This is so awful for you both. You are both constantly in my thoughts. Sending huge hugs and strength as always. Take Care. 

    Vicky xx

  • Jkee not sure what to say at all especially having Hugo as well.   Les just feels yuk and very tired at night. I went to bed early and he felt dreadful but I did ask if he wanted me to stay up but he said no.  He gets angry if I persist so I am letting him do as he wants. He gets really dark thoughts. I really don’t know how you are managing and coping. What causes the rash do you know.  It must be very sore for Simon. Will you be going to Manchester as I know that is a trek for you both.  My thoughts are with you.  Sending you all my love xxx